Author Affiliations: Research Centre Autonomy and Participation of Persons With a Chronic Illness (Drs Friesen-Storms, Bours, Moser) and Academy of Nursing (Drs Friesen-Storms, Bours, and Moser), Zuyd University of Applied Sciences, Heerlen; Research Centre for Integrative Patient Centred Health Care, Heerlen, the Netherlands (Dr Jie); Department of Health Services Research (Dr Bours) and Department of Family Medicine (Drs Friesen, Moser, van der Weijden, and Beurskens), Care and Public Health Research Institute, Maastricht University; Zuyderland Medical Center, Sittard-Geleen (Dr Jie and Mr Quadvlieg-Delnoy); and Sytrec Psychotrauma Expertise Centre, Weert (Mr Heijmans), the Netherlands.
Cancer Nurs. 2021;44(6):489-498. doi: 10.1097/NCC.0000000000000850.
Survivors of lymphoma experience multiple challenges after treatment. However, a lack of knowledge of in-depth experiences of lymphoma survivors in early aftercare persists.
To gain an in-depth understanding of the experiences of lymphoma survivors in early aftercare who have received an aftercare consultation based on evidence-based guideline recommendations, with an advanced practice nurse.
This study used a narrative design. We recruited lymphoma survivors after a best-practice aftercare consultation with an advanced practice nurse. A total of 22 lymphoma survivors and 9 partners participated. Data were collected through narrative interviews and analyzed according to thematic narrative analysis.
Six themes emerged: living and dealing with health consequences, coping with work and financial challenges, having a positive outlook and dealing with uncertainty, deriving strength from and experiencing tensions in relationships, getting through tough times in life, and receiving support from healthcare professionals.
The stories of lymphoma survivors in early aftercare revealed their experiences of how they coped with a range of challenges in their personal lives. Choosing an aftercare trajectory based on an aftercare consultation that encourages patients to think about their issues, goals, and possible aftercare options may be useful for their transition from treatment to survivorship.
Survivors' social support and self-management capabilities are important aspects to be addressed in cancer care. An aftercare consultation involving shared goal setting and care planning may help nurses provide personalized aftercare.
淋巴瘤幸存者在治疗后会面临多种挑战。然而，对于接受过基于循证指南建议的高级实践护士进行的后续护理咨询的淋巴瘤幸存者的深入体验，我们仍缺乏了解。
深入了解接受过循证指南建议的高级实践护士进行的后续护理咨询的淋巴瘤幸存者在早期后续护理中的体验。
本研究采用叙事设计。我们招募了在接受高级实践护士的最佳实践后续护理咨询后幸存的淋巴瘤患者。共有 22 名淋巴瘤幸存者和 9 名伴侣参与。通过叙事访谈收集数据，并根据主题叙事分析进行分析。
出现了六个主题：应对健康后果、应对工作和财务挑战、保持积极的态度和应对不确定性、从关系中获得力量并体验紧张关系、度过生活中的艰难时期以及从医疗保健专业人员那里获得支持。
早期后续护理中淋巴瘤幸存者的故事揭示了他们在个人生活中应对一系列挑战的经历。选择基于后续护理咨询的后续护理轨迹，鼓励患者思考自己的问题、目标和可能的后续护理选择，可能有助于他们从治疗过渡到生存。
幸存者的社会支持和自我管理能力是癌症护理中需要解决的重要方面。涉及共同设定目标和护理计划的后续护理咨询可能有助于护士提供个性化的后续护理。
