Wimmesberger Nicole, Bierbaum Thomas, Keßler Laura, Brütt Anna Levke, Farin-Glattacker Erik
Institut für Medizinische Biometrie und Statistik, Universitatsklinikum Freiburg Sektion Versorgungsforschung und Rehabilitationsforschung, Freiburg, Germany.
Geschäftsstelle, Deutsches Netzwerk Versorgungsforschung, Berlin, Germany.
Gesundheitswesen. 2024 Jun;86(6):447-450. doi: 10.1055/a-2144-5973. Epub 2023 Oct 9.
The aim of this online survey was to assess the need, acceptance and practical feasibility of a training program for research partners in health services research by patients and the public.
In January 2023, we sent the survey to patient associations and groups nationwide via Patient Advisory Board members of the German Network for Health Services Research (DNVF). The survey included both closed and open questions. The research team analysed the information provided by the participants (n=125) descriptively and used content analysis according to Kuckartz and Rädiker (2022).
The majority (90.4%) of respondents considered patient and the public involvement in the planning and implementation of scientific studies to be very or extremely important. 41.5% (17.9%) of respondents indicated that more than 10% (more than 25%) of patients would be willing to participate in free training and be available as research partners. More than three-quarters (76.8%) of respondents agreed that training was very or extremely important. Participants preferred written information (57.3%), short online training (56.5%) and short digital information sessions (53.2%). Frequently cited barriers to delivering training include travel costs (60%), time (53.3%) and the need for extensive prior information (48.3%). Participants' suggestions for successful training implementation included comprehensibility of the training program and its organisation (location, duration and format).
In addition to the high training needs of research partners, the results also reveal some obstacles. A compact, comprehensible and digital information event with written information material increases acceptance. Researchers should take these results into account when designing and implementing training programs.
本次在线调查旨在评估患者和公众对卫生服务研究中研究伙伴培训项目的需求、接受度及实际可行性。
2023年1月，我们通过德国卫生服务研究网络（DNVF）的患者咨询委员会成员，将调查问卷发送给全国范围内的患者协会和团体。该调查包括封闭式和开放式问题。研究团队对参与者（n = 125）提供的信息进行了描述性分析，并根据库卡茨和拉迪克尔（2022年）的方法进行了内容分析。
大多数（90.4%）受访者认为患者和公众参与科学研究的规划和实施非常或极其重要。41.5%（17.9%）的受访者表示，超过10%（超过25%）的患者愿意参加免费培训并作为研究伙伴。超过四分之三（76.8%）的受访者同意培训非常或极其重要。参与者更喜欢书面信息（57.3%）、简短的在线培训（56.5%）和简短的数字信息会议（53.2%）。经常提到的培训障碍包括差旅费（60%）、时间（53.3%）和需要大量的预先信息（48.3%）。参与者对成功实施培训的建议包括培训项目及其组织（地点、时长和形式）的易懂性。
除了研究伙伴对培训的高需求外，结果还揭示了一些障碍。提供书面信息材料的紧凑、易懂的数字信息活动会提高接受度。研究人员在设计和实施培训项目时应考虑这些结果。
