Russell Ginny, Wilkinson Sam
University of Exeter, Exeter, UK.
University of Exeter, Exeter, UK.
Cortex. 2023 Dec;169:1-4. doi: 10.1016/j.cortex.2023.09.002. Epub 2023 Sep 26.
This article tackles the theoretical thinking behind PPI and inclusion, input from people with neurodiverse conditions. By providing a perspective on how the prefix "Neuro" is positioned in a neutral and authoritative way (exemplified through our brief review of articles within Cortex), we explore how "epistemic injustice" (a concept used frequently in law, politics, philosophy and social science) can potentially arise. Epistemic injustice typically refers to a pernicious power dynamic whereby oppressed groups are silenced (Fricker 2007), either because certain voices are not given weight ("testimonial injustice"), or the ways in which they are allowed to speak (e.g., interpret their own experiences) are limited ("hermeneutical injustice") (Kidd and Carel 2016). We show how, for "neurodiversity", the mainstream "neuro" narratives are often positively felt by those deemed to be neurodiverse, and the lines between oppressor and oppressed break down, as both neuroscientists and people with neurodiverse conditions co-opt and influence each other's positions.
本文探讨了患者与公众参与(PPI)及包容性背后的理论思考,以及神经差异人士的观点。通过提供一个关于“神经”前缀如何以中立且权威的方式定位的视角(通过我们对《皮层》杂志内文章的简要回顾举例说明),我们探究了“认知不公正”(一个在法律、政治、哲学和社会科学中经常使用的概念)是如何可能出现的。认知不公正通常指一种有害的权力动态,即受压迫群体被噤声(弗里克,2007年),这要么是因为某些声音未被重视(“证言论不公正”),要么是他们被允许发声的方式(例如,解释自己的经历)受到限制(“诠释不公正”)(基德和卡雷尔,2016年)。我们展示了,对于“神经多样性”而言,主流的“神经”叙事往往被那些被视为神经差异的人积极看待,压迫者与被压迫者之间的界限变得模糊,因为神经科学家和神经差异人士相互采纳并影响彼此的立场。