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新生儿姑息治疗作为希腊国家医疗保健系统的一个组成部分:是时候采取行动了。

Neonatal Palliative Care as an Integral Component of the Greek National Healthcare System: Time to Act.

作者信息

Apostolidi Dimitra Maria, Pantelaki Nikoletta, Sarantaki Antigoni, Dragioti Elena, Metallinou Dimitra

机构信息

Department of Midwifery, School of Health and Care Sciences, University of West Attica, Athens, GRC.

Research Laboratory Psychology of Patients, Families & Health Professionals, University of Ioannina, Ioannina, GRC.

出版信息

Cureus. 2023 Sep 18;15(9):e45498. doi: 10.7759/cureus.45498. eCollection 2023 Sep.

Abstract

Neonatal palliative care aims to provide multidisciplinary support to families and neonates suffering from life-threatening or life-limiting diseases. Many countries worldwide have recognized the importance of enhancing the quality of life in critically ill neonates and thus have created and systematically implemented palliative care protocols in neonatal intensive care units (NICUs). Europe has a very low neonatal mortality rate, which has been steadily decreasing over the last 30 years. Greece in particular, a country located in Southeast Europe, reported a neonatal mortality rate of 2.29/1,000 live births in 2020. Nevertheless, neonatal palliative care facilities are scarce on a national level. In this paper, several reasons are presented to support the integration of neonatal palliative care in the Greek national healthcare system with the vision to ensure that all neonates and their families will receive in the near future the care, support, and dignity they deserve when facing life-threatening or life-limiting illnesses.

摘要

新生儿姑息治疗旨在为患有危及生命或限制生命疾病的家庭和新生儿提供多学科支持。世界上许多国家都认识到提高危重新生儿生活质量的重要性,因此在新生儿重症监护病房(NICU)制定并系统实施了姑息治疗方案。欧洲的新生儿死亡率很低,在过去30年里一直在稳步下降。特别是位于东南欧的希腊,2020年报告的新生儿死亡率为每1000例活产2.29例。然而,在国家层面上,新生儿姑息治疗设施却很稀缺。本文提出了几个理由,以支持将新生儿姑息治疗纳入希腊国家医疗体系,以期确保所有新生儿及其家庭在不久的将来面对危及生命或限制生命的疾病时,能够得到他们应得的护理、支持和尊严。

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