Neonatology, Homerton University Hospital NHS Foundation Trust, London, UK.
Pediatrics, Centre for Paediatrics, Bart's and the London School of Medicine and Dentistry, London, UK.
BMJ Paediatr Open. 2021 Feb 1;5(1):e000820. doi: 10.1136/bmjpo-2020-000820. eCollection 2021.
A lack of well-structured guideline or care pathway results in inadequate, inconsistent and fragmented palliative care (PC) for babies and their families. The impact on the families could be emotionally and psychologically distressing. Not all neonatal units have specialist PC clinicians or teams, and such units will benefit from a well-planned perinatal PC pathway. In this article, we discuss a tertiary neonatal unit perinatal care pathway which provides guidance from the point of diagnosis and establishment of eligibility of a baby for PC through to care after death and bereavement support for families. Planning PC with families which encourages family-centred and individualised approach is also discussed.
缺乏结构良好的指南或护理路径会导致婴儿及其家庭的姑息治疗（PC）不足、不一致和碎片化。这对家庭的影响可能会在情感和心理上造成困扰。并非所有新生儿病房都有专业的 PC 临床医生或团队，而这些单位将受益于精心规划的围产期 PC 途径。在本文中，我们讨论了一个三级新生儿病房围产期护理途径，该途径从诊断和确定婴儿是否有资格接受 PC 治疗开始，到死亡后的护理和为家庭提供丧亲支持提供指导。我们还讨论了与家庭一起规划 PC，鼓励以家庭为中心和个体化的方法。
