Oosterhaven Janke, Pell Christopher D, Schröder Carin D, Popma Hans, Spierenburg Loes, Devillé Walter L J M, Wittink Harriet
Research Group Lifestyle and Health, University of Applied Sciences Utrecht, Utrecht, The Netherlands.
Amsterdam Institute for Social Science Research, University of Amsterdam, Amsterdam, the Netherlands.
Pain Rep. 2023 Oct 18;8(6):e1093. doi: 10.1097/PR9.0000000000001093. eCollection 2023 Dec.
Pain neuroscience education is part of interdisciplinary pain management programs (IPMPs). To date, the role of health literacy on patients' understanding of pain neuroscience education has not sufficiently been examined.
Drawing on interviews with patients with diverse levels of health literacy, this article explores patient perspectives on pain neuroscience education.
Purposively sampled patients from an IPMP were interviewed twice (waiting list and after 4 weeks). A directed qualitative content analysis was performed with the Integrated Conceptual Model of Health Literacy as an analytic framework.
Thirteen patients with chronic musculoskeletal pain were interviewed: 4 men and 9 women aged from 21 to 77 years with diverse educational and mostly low health literacy. One participant dropped out after baseline. Some participants gained access to health information actively; others relied on the expertise of their healthcare providers. Most participants did not seem to receive the information in the pain neuroscience education as intended, experienced difficulties with understanding the message, negatively appraised the information, and were not able to apply this in their daily lives. Health literacy levels likely played a role in this.
Pain neuroscience education tailored to patients' health literacy levels, information needs, and learning strategies is needed.
疼痛神经科学教育是跨学科疼痛管理项目（IPMPs）的一部分。迄今为止，健康素养对患者理解疼痛神经科学教育的作用尚未得到充分研究。
通过对不同健康素养水平的患者进行访谈，本文探讨患者对疼痛神经科学教育的看法。
从一个IPMP中有目的地抽取患者进行两次访谈（等待名单阶段和4周后）。以健康素养综合概念模型为分析框架进行定向定性内容分析。
对13名慢性肌肉骨骼疼痛患者进行了访谈：4名男性和9名女性，年龄在21至77岁之间，教育程度各异，且大多健康素养较低。一名参与者在基线后退出。一些参与者积极获取健康信息；另一些则依赖医疗服务提供者的专业知识。大多数参与者似乎没有按预期接受疼痛神经科学教育中的信息，在理解信息方面存在困难，对信息评价负面，且无法将其应用于日常生活。健康素养水平可能在其中起到了作用。
需要根据患者的健康素养水平、信息需求和学习策略来定制疼痛神经科学教育。
