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英格兰极早产儿的父母的育儿压力和与健康相关的生活质量:一项横断面研究。

Parenting stress and health-related quality of life among parents of extremely preterm born early adolescents in England: a cross-sectional study.

机构信息

EGA UCL Institute for Women's Health, University College London, London, UK

EGA UCL Institute for Women's Health, University College London, London, UK.

出版信息

Arch Dis Child Fetal Neonatal Ed. 2024 Apr 18;109(3):253-260. doi: 10.1136/archdischild-2023-325429.

DOI:10.1136/archdischild-2023-325429
PMID:37879883
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11041583/
Abstract

OBJECTIVE

To determine whether extremely preterm (EP) birth exerts persisting effects on parents in early adolescence.

DESIGN

Cross-sectional survey conducted between March 2017 and October 2018.

SETTING

Evaluation of a longitudinal population-based birth cohort in England at 11 years of age (EPICure2@11 Study).

PARTICIPANTS

Parents of EP (<27 weeks of gestation) adolescents and control parents of term born (≥37 weeks of gestation) classmates of similar age and sex.

MAIN OUTCOME MEASURES

The Parenting Stress Index Short Form (PSI-4-SF) and the Short Form Health Survey (SF-12v1).

RESULTS

The 163 EP and 125 comparison respondents were most commonly mothers in their mid-40s. EP parents reported higher total parenting stress scores compared with controls, overall (adjusted difference in means: 14 (95% CI 9 to 20)) and after exclusion of moderate and severe child disability and multiples (9 (95% CI 3 to 15). Average physical and mental health-related quality of life scores were similar in the two groups (adjusted difference in means physical health: -2 (95% CI -4 to 1) and mental health: -1 (95% CI -4 to 1)). Among EP parents, 12% (20/164) reported the combination of high parenting stress and low mental health scores. With increasing child age, parenting stress scores for preterm parents were lower in contrast to controls who reported increasing parenting stress.

CONCLUSIONS

In early adolescence, compared with parents of term-born children, EP parents experience increased levels of parenting stress that are particularly high among a proportion of parents and associated with lower mental health-related quality of life. Practitioner awareness of this continuing risk throughout childhood is important to support parental abilities and well-being.

摘要

目的

确定极早产儿(EP)出生是否对青少年早期的父母产生持续影响。

设计

2017 年 3 月至 2018 年 10 月期间进行的横断面调查。

设置

在英格兰评估一项基于人群的纵向出生队列在 11 岁时(EPICure2@11 研究)。

参与者

EP(<27 周妊娠)青少年的父母和年龄、性别相似的足月出生(≥37 周妊娠)同学的对照父母。

主要观察指标

父母压力指数简短版(PSI-4-SF)和简短健康调查(SF-12v1)。

结果

163 名 EP 和 125 名对照应答者的母亲年龄最常见为 40 多岁中期。EP 父母报告的总育儿压力评分高于对照组,总体(调整后的平均差异:14(95%置信区间 9 至 20)),并且排除中度和重度儿童残疾和多胎(9(95%置信区间 3 至 15))。两组的平均生理和心理健康相关生活质量评分相似(调整后的生理健康差异均值:-2(95%置信区间-4 至 1)和心理健康:-1(95%置信区间-4 至 1))。在 EP 父母中,12%(20/164)报告存在高育儿压力和低心理健康评分的组合。随着孩子年龄的增长,与报告育儿压力不断增加的对照组相比,早产儿父母的育儿压力评分较低。

结论

在青少年早期,与足月出生儿童的父母相比,EP 父母经历更高水平的育儿压力,其中一部分父母的压力特别高,与心理健康相关的生活质量较低相关。整个儿童期从业者对这种持续风险的认识对于支持父母的能力和幸福感很重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c067/11041583/b803b80e815c/fetalneonatal-2023-325429f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c067/11041583/ed075249cebe/fetalneonatal-2023-325429f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c067/11041583/b803b80e815c/fetalneonatal-2023-325429f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c067/11041583/ed075249cebe/fetalneonatal-2023-325429f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c067/11041583/b803b80e815c/fetalneonatal-2023-325429f02.jpg

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