Millman Alexandra, Gabela Armin, Morgantini Luca, Acar Omer, Kocjancic Ervin
Department of Urology, University of Illinois at Chicago, Chicago, IL, USA.
Department of Urology, Women's College Hospital, Toronto, ON, Canada.
Int J Impot Res. 2023 Oct 25. doi: 10.1038/s41443-023-00783-5.
This study aimed to investigate the informational preferences of patients undergoing gender-affirming vaginoplasty during their surgical journey. An anonymous survey was sent to 30 such patients who had the procedure between September 2018 and September 2020. The survey included Likert-scale questions about the importance of various topics and inquired about their preferred sources and formats for receiving this information. The responses of 17 individuals (56.7% response rate) were analyzed using descriptive statistics and qualitative thematic analysis. Key findings indicated that all topics in the survey were rated as moderately important or higher. Specifically, for 29 out of 30 pre-operative topics (96.7%), participants preferred written information, and for 27 topics (90.0%), they favored receiving information directly from their surgeon. Thematic analysis revealed five main themes: recovery process, satisfaction, trust in healthcare providers, information delivery, and neovaginal dilation and depth. In conclusion, individuals undergoing gender-affirming vaginoplasty have significant informational needs. They prefer to receive information from their surgical team, supplemented by written resources and verbal discussions. Notably, the importance of understanding neovaginal dilation and being aware of possible complications emerged as a key concern. The study also highlighted the importance of cultural competence and trust-building with healthcare providers, underscoring the need for more inclusive care practices.
本研究旨在调查接受性别确认阴道成形术的患者在手术过程中的信息偏好。向2018年9月至2020年9月期间接受该手术的30名此类患者发送了一份匿名调查问卷。该调查包括关于各种主题重要性的李克特量表问题,并询问了他们接收此信息的首选来源和形式。使用描述性统计和定性主题分析对17名个体(回复率56.7%)的回复进行了分析。主要发现表明,调查中的所有主题都被评为中等重要或更重要。具体而言,在30个术前主题中的29个(96.7%)中,参与者更喜欢书面信息,在27个主题(90.0%)中,他们倾向于直接从外科医生那里获得信息。主题分析揭示了五个主要主题:恢复过程、满意度、对医疗服务提供者的信任、信息传递以及新阴道扩张和深度。总之,接受性别确认阴道成形术的个体有重大的信息需求。他们更喜欢从手术团队那里获得信息,并辅以书面资料和口头讨论。值得注意的是,了解新阴道扩张以及意识到可能的并发症的重要性成为一个关键问题。该研究还强调了文化能力以及与医疗服务提供者建立信任的重要性,突出了更具包容性的护理实践的必要性。