Brain Korea 21 FOUR Project, College of Nursing, Yonsei University, Seoul, Republic of Korea.
College of Nursing, Korea University, Seoul, Republic of Korea.
PLoS One. 2023 Oct 26;18(10):e0284015. doi: 10.1371/journal.pone.0284015. eCollection 2023.
Disease-specific interventions for management and health behavior implementation are needed to improve the health and quality of life of adolescents with moyamoya disease.
This study aimed to develop a program for adolescents with moyamoya disease based on the salutogenesis theory, which focuses on the process of enhancing health through successful adaptation to external stressors, and to evaluate its effectiveness.
A randomized controlled trial was performed according to the CONSORT guidelines. This preliminary research and experimental treatment were conducted at a Severance Hospital ward and outpatient clinic among 48 participants randomized into the intervention (seven sessions of salutogenesis program, n = 24) or the control group (one session of one-to-one moyamoya disease education program, n = 24) from September 6, 2018 to January 4, 2019. Changes in the following study outcomes were reported: "knowledge of moyamoya disease," "social support," "sense of coherence," "moyamoya disease health behavior," "stress," "depression," "subjective health status," "frequency of ischemic symptoms," and "quality of life".
The salutogenesis program improved the knowledge and social support of adolescents with illness-related problems and helped them attain healthy behaviors and stress reduction. It was confirmed to be effective in improving their quality of life.
The salutogenesis program for adolescents with moyamoya disease effectively improved the generalized resistance resources and sense of coherence in adolescents with moyamoya disease.
Korean Clinical Research Information Service registry, KCT0006869.
需要针对疾病的干预措施来管理和实施健康行为，以改善青少年烟雾病患者的健康状况和生活质量。
本研究旨在基于健康促进理论为青少年烟雾病患者制定一个方案，该理论侧重于通过成功适应外部压力源来增强健康的过程，并评估其有效性。
根据 CONSORT 指南进行了一项随机对照试验。这项初步研究和实验性治疗在首尔峨山医院病房和门诊进行，共有 48 名参与者被随机分为干预组（7 节健康促进方案，n = 24）或对照组（1 节一对一烟雾病教育方案，n = 24）。研究结果报告了以下变化：“烟雾病知识”、“社会支持”、“心理一致感”、“烟雾病健康行为”、“压力”、“抑郁”、“主观健康状况”、“缺血症状频率”和“生活质量”。
健康促进方案改善了与疾病相关问题的青少年的知识和社会支持，并帮助他们养成健康行为和减轻压力。它被证实对改善生活质量有效。
针对青少年烟雾病患者的健康促进方案有效地改善了青少年烟雾病患者的一般适应资源和心理一致感。
韩国临床试验注册信息服务，KCT0006869。
