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采用协同设计程序的数字健康二级预防:针对医疗保健提供者和心肌梗死患者的焦点小组研究

Digital Health Secondary Prevention Using Co-Design Procedures: Focus Group Study With Health Care Providers and Patients With Myocardial Infarction.

作者信息

Pelly Melissa Louise, Fatehi Farhad, Liew Danny, Verdejo-Garcia Antonio

机构信息

Turner Institute for Brain and Mental Health, School of Psychological Sciences, Monash University, Melbourne, Australia.

School of Public Health and Preventive Medicine, Monash University, Melbourne, Australia.

出版信息

JMIR Cardio. 2023 Oct 30;7:e49892. doi: 10.2196/49892.

Abstract

BACKGROUND

Myocardial infarction (MI) is a debilitating condition and a leading cause of morbidity and mortality worldwide. Digital health is a promising approach for delivering secondary prevention to support patients with a history of MI and for reducing risk factors that can lead to a future event. However, its potential can only be fulfilled when the technology meets the needs of the end users who will be interacting with this secondary prevention.

OBJECTIVE

We aimed to gauge the opinions of patients with a history of MI and health professionals concerning the functions, features, and characteristics of a digital health solution to support post-MI care.

METHODS

Our approach aligned with the gold standard participatory co-design procedures enabling progressive refinement of feedback via exploratory, confirmatory, and prototype-assisted feedback from participants. Patients with a history of MI and health professionals from Australia attended focus groups over a videoconference system. We engaged with 38 participants across 3 rounds of focus groups using an iterative co-design approach. Round 1 included 8 participants (4 patients and 4 health professionals), round 2 included 24 participants (11 patients and 13 health professionals), and round 3 included 22 participants (14 patients and 8 health professionals).

RESULTS

Participants highlighted the potential of digital health in addressing the unmet needs of post-MI care. Both patients with a history of MI and health professionals agreed that mental health is a key concern in post-MI care that requires further support. Participants agreed that family members can be used to support postdischarge care and require support from the health care team. Participants agreed that incorporating simple games with a points system can increase long-term engagement. However, patients with a history of MI emphasized a lack of support from their health care team, family, and community more strongly than health professionals. They also expressed some openness to using artificial intelligence, whereas health professionals expressed that users should not be aware of artificial intelligence use.

CONCLUSIONS

These results provide valuable insights into the development of digital health secondary preventions aimed at supporting patients with a history of MI. Future research can implement a pilot study in the population with MI to trial these recommendations in a real-world setting.

摘要

背景

心肌梗死(MI)是一种使人衰弱的疾病,是全球发病和死亡的主要原因。数字健康是一种很有前景的二级预防方法,可用于支持有心肌梗死病史的患者,并降低可能导致未来发病的风险因素。然而,只有当技术满足将与这种二级预防进行交互的终端用户的需求时,其潜力才能得以实现。

目的

我们旨在评估有心肌梗死病史的患者和医疗保健专业人员对支持心肌梗死后护理的数字健康解决方案的功能、特性和特点的看法。

方法

我们的方法与金标准参与式协同设计程序一致,通过参与者的探索性、验证性和原型辅助反馈,逐步完善反馈。有心肌梗死病史的患者和来自澳大利亚的医疗保健专业人员通过视频会议系统参加了焦点小组。我们采用迭代协同设计方法,在3轮焦点小组中与38名参与者进行了交流。第1轮包括8名参与者(4名患者和4名医疗保健专业人员),第2轮包括24名参与者(11名患者和13名医疗保健专业人员),第3轮包括22名参与者(14名患者和8名医疗保健专业人员)。

结果

参与者强调了数字健康在满足心肌梗死后护理未满足需求方面的潜力。有心肌梗死病史的患者和医疗保健专业人员都认为,心理健康是心肌梗死后护理中的一个关键问题,需要进一步支持。参与者一致认为,家庭成员可用于支持出院后护理,且需要医疗团队的支持。参与者一致认为,将简单游戏与积分系统相结合可以提高长期参与度。然而,有心肌梗死病史的患者比医疗保健专业人员更强烈地强调缺乏来自其医疗团队、家庭和社区的支持。他们还对使用人工智能表现出一定的开放性,而医疗保健专业人员则表示用户不应知晓人工智能的使用情况。

结论

这些结果为旨在支持有心肌梗死病史患者的数字健康二级预防的发展提供了有价值的见解。未来的研究可以在心肌梗死人群中开展一项试点研究,在现实环境中试验这些建议。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5181/10644192/9cc7e9a4e475/cardio_v7i1e49892_fig1.jpg

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