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肝、肾移植受者的远程医疗体验:混合方法研究。

Telehealth Experience Among Liver and Kidney Transplant Recipients: A Mixed Methods Study.

机构信息

School of Nursing, Bouvé College of Health Sciences, Northeastern University, Boston, MA, United States.

Department of Health Sciences, Bouvé College of Health Sciences, Northeastern University, Boston, MA, United States.

出版信息

Transpl Int. 2023 Oct 16;36:11819. doi: 10.3389/ti.2023.11819. eCollection 2023.

Abstract

Telehealth has become widely available to solid organ transplant (SOT) recipients during the COVID-19 pandemic. While evidence suggests that telehealth serves as an acceptable alternative for most SOT recipients, their satisfaction and its context remain unclear. This study used a mixed methods approach to investigate the perspectives of SOT recipients (i.e., liver, kidney, and simultaneous liver-kidney) on the benefits and disadvantages of telehealth. A total of 252 adult SOT recipients completed an online survey that quantitatively assessed telehealth experience and satisfaction. Fifteen of them further shared their perspectives by participating in either a focus group or individual interview. Approximately 70% of online survey participants had previously used telehealth for their transplant care. The quantitative data documented that, while recipients were mostly satisfied with telehealth, especially with its effectiveness and convenience, they were less satisfied with the reliability of navigating the telehealth system. The qualitative data further showed that telehealth could be less effective for SOT recipients who perceived themselves as clinically and/or socially vulnerable, needed urgent care, and were concerned about privacy. These findings suggest that the plan for using telehealth to provide transplant care should prioritize personalization, considering unique needs and preferences of each SOT recipient.

摘要

远程医疗在 COVID-19 大流行期间已广泛提供给实体器官移植(SOT)受者。虽然有证据表明远程医疗是大多数 SOT 受者可接受的替代方案,但他们的满意度及其背景尚不清楚。本研究采用混合方法,调查了 SOT 受者(即肝、肾和肝-肾同时移植)对远程医疗的优缺点的看法。共有 252 名成年 SOT 受者完成了一项在线调查,该调查定量评估了远程医疗的体验和满意度。其中 15 人通过参加焦点小组或个人访谈进一步分享了他们的观点。大约 70%的在线调查参与者之前曾使用远程医疗进行移植护理。定量数据记录表明,虽然受者对远程医疗大多感到满意,尤其是对其有效性和便利性,但他们对远程医疗系统的可靠性不太满意。定性数据还表明,对于那些认为自己在临床和/或社会上脆弱、需要紧急护理以及担心隐私的 SOT 受者来说,远程医疗可能效果较差。这些发现表明,使用远程医疗提供移植护理的计划应优先考虑个性化,考虑每个 SOT 受者的独特需求和偏好。

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