Program in Biomedical Ethics Research, Mayo Clinic, Rochester, MN, United States.
Division of Pulmonary and Critical Care Medicine, Mayo Clinic, Rochester, MN, United States.
J Med Internet Res. 2023 Mar 28;25:e44242. doi: 10.2196/44242.
Telehealth has been increasingly adopted by health care systems since the start of the COVID-19 pandemic. Although telehealth may provide convenience for patients and clinicians, there are several barriers to accessing it and using it effectively to provide high-quality patient care.
This study was part of a larger multisite community-engaged study conducted to understand the impact of COVID-19 on diverse communities. The work described here explored the perceptions of and experience with telehealth use among diverse and underserved community members during COVID-19.
We used mixed methods across three regions in the United States (Midwest, Arizona, and Florida) from January to November 2021. We promoted our study through social media and community partnerships, disseminating flyers in English and Spanish. We developed a moderator guide and conducted focus groups in English and Spanish, mostly using a videoconferencing platform. Participants were placed in focus groups with others who shared similar demographic attributes and geographic location. Focus groups were audio-recorded and transcribed. We analyzed our qualitative data using the framework analytic approach. We developed our broader survey using validated scales and with input from community and scientific leaders, which was then distributed through social media in both English and Spanish. We included a previously published questionnaire that had been used to assess perceptions about telehealth among patients with HIV. We analyzed our quantitative data using SAS software and standard statistical approaches. We examined the effect of region, age, ethnicity/race, and education on the use and perceptions of telehealth.
We included data from 47 focus groups. Owing to our mode of dissemination, we were not able to calculate a response rate for the survey. However, we received 3447 English-language and 146 Spanish-language responses. Over 90% of participants had internet access and 94% had used telehealth. Approximately half of all participants agreed or strongly agreed that telehealth would be beneficial in the future because it better fit their schedules and they would not need to travel. However, approximately half of the participants also agreed or strongly agreed they would not be able to express themselves well and could not be examined when using telehealth. Indigenous participants were especially concerned about these issues when compared to other racial groups.
This work describes findings from a mixed methods community-engaged research study about telehealth, including perceived benefits and concerns. Although participants enjoyed the benefits of telehealth (eg, not having to travel and easier scheduling), they also had concerns (eg, not being able to express themselves well and not having a physical exam) about telehealth. These sentiments were especially notable among the Indigenous population. Our work highlights the importance of fully understanding the impact of these novel health delivery modalities on the patient experience and actual or perceived quality of care received.
自 COVID-19 大流行开始以来,远程医疗已被医疗保健系统越来越多地采用。虽然远程医疗可能为患者和临床医生提供便利,但在获得和有效使用它为患者提供高质量护理方面存在一些障碍。
本研究是一项更大的多地点社区参与研究的一部分,旨在了解 COVID-19 对不同社区的影响。这里描述的工作探讨了在 COVID-19 期间,不同和服务不足的社区成员对远程医疗使用的看法和体验。
我们使用了来自美国三个地区(中西部、亚利桑那州和佛罗里达州)的混合方法,时间为 2021 年 1 月至 11 月。我们通过社交媒体和社区合作伙伴关系宣传我们的研究,以英语和西班牙语分发传单。我们制定了一份主持人指南,并使用视频会议平台进行了焦点小组讨论,主要使用视频会议平台。参与者与其他具有相似人口统计学特征和地理位置的人一起被安排在焦点小组中。焦点小组进行了录音和转录。我们使用框架分析方法分析了我们的定性数据。我们使用经过验证的量表和社区和科学领导人的意见制定了更广泛的调查,然后通过英语和西班牙语在社交媒体上发布。我们包括了之前用于评估 HIV 患者对远程医疗看法的调查问卷。我们使用 SAS 软件和标准统计方法分析了我们的定量数据。我们研究了地区、年龄、族裔/种族和教育对远程医疗使用和看法的影响。
我们包括了 47 个焦点小组的数据。由于我们的传播方式,我们无法计算调查的回复率。然而,我们收到了 3447 份英语和 146 份西班牙语的回复。超过 90%的参与者可以上网,94%的参与者使用过远程医疗。大约一半的参与者同意或强烈同意远程医疗在未来将是有益的,因为它更符合他们的日程安排,他们不需要旅行。然而,大约一半的参与者也同意或强烈同意他们无法很好地表达自己,并且在使用远程医疗时无法接受检查。与其他种族群体相比,土著参与者尤其关注这些问题。
这项工作描述了一项混合方法的社区参与研究关于远程医疗的发现,包括感知到的好处和担忧。虽然参与者喜欢远程医疗的好处(例如,无需旅行和更方便的日程安排),但他们也对远程医疗有一些担忧(例如,无法很好地表达自己和无法进行身体检查)。这些情绪在土著人群中尤为明显。我们的工作强调了充分了解这些新的医疗服务模式对患者体验和实际或感知到的护理质量的影响的重要性。