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捷克共和国艾滋病毒感染者的污名化和歧视:一项试点研究。

Stigmatization and discrimination of people living with HIV in the Czech Republic: a pilot study.

机构信息

National Institute of Public Health, Prague, Czech Republic.

Department of Epidemiology and Biostatistics, Third Faculty of Medicine, Charles University, Prague, Czech Republic.

出版信息

Cent Eur J Public Health. 2023 Sep;31(3):210-216. doi: 10.21101/cejph.a7782.

Abstract

OBJECTIVES

HIV positivity diagnosis is often accompanied by stigmatization and discrimination, even in developed societies. The aim of the study was to obtain current information on the quality of life of people living with HIV in the Czech Republic, to assess the level and perception of stigmatization and discrimination, and to identify existing problems of people living with HIV concerning health services, family and the public.

METHODS

Data for the pilot study were collected by convenience sampling between 2021 and 2022. Respondents were recruited from residents of Czech nationality and foreigners living with HIV in the Czech Republic who participated in an ECDC online questionnaire study or attended a convalescent stay for people living with HIV. Likert scales were used to capture key opinions, attitudes and beliefs of respondents. Data were processed using descriptive analysis.

RESULTS

The study involved 42 people living with HIV. A total of 77% of the respondents reported that they had learned to live with their HIV-positive status, but 21% admitted to having low self-esteem due to their status. A total of 81% of the respondents had disclosed their HIV-positive status to someone outside of the healthcare setting, however, 40% of the respondents found it difficult to do so. Assault or threats from a sexual partner were reported by 17% of the respondents. A total of 27% of the respondents admitted having been denied or suspended health care, 44% reported inappropriate comments from healthcare workers, and 32% of the respondents avoided visiting the healthcare facility. Alarmingly, 41% of the respondents had been refused dental care at some point in the past because of their HIV-positive status.

CONCLUSIONS

Although the study presents only limited findings due to the small number of respondents, it is clear that stigmatization and discrimination of people living with HIV exists in the Czech society. It brings the risk of loss of motivation and involvement of people living with HIV in working together with healthcare providers on their treatment. There is a clear need for a larger study to identify the causes of stigmatization and to find ways to prevent it.

摘要

目的

艾滋病毒阳性诊断通常伴随着污名化和歧视,即使在发达国家也是如此。本研究的目的是获取关于捷克共和国艾滋病毒感染者生活质量的最新信息,评估污名化和歧视的程度和感知,并确定艾滋病毒感染者在卫生服务、家庭和公众方面存在的问题。

方法

通过便利抽样,于 2021 年至 2022 年期间收集了试点研究的数据。从居住在捷克的捷克国民和在捷克的外国艾滋病毒感染者中招募了调查对象,他们参加了 ECDC 的在线问卷调查研究或参加了艾滋病毒感染者的康复疗养。使用李克特量表来捕捉调查对象的关键意见、态度和信念。使用描述性分析处理数据。

结果

研究涉及 42 名艾滋病毒感染者。共有 77%的调查对象报告说,他们已经学会了接受艾滋病毒阳性状态,但 21%的调查对象承认由于他们的状态而自尊心较低。共有 81%的调查对象向医疗保健机构以外的人透露了他们的艾滋病毒阳性状态,但 40%的调查对象发现难以这样做。17%的调查对象报告说遭到性伴侣的攻击或威胁。共有 27%的调查对象承认曾被拒绝或暂停医疗保健,44%的调查对象报告说医护人员有不当言论,32%的调查对象避免去医疗机构。令人震惊的是,41%的调查对象过去因艾滋病毒阳性状态而被拒绝牙科治疗。

结论

尽管由于调查对象人数较少,本研究仅提供了有限的发现,但很明显,捷克社会存在艾滋病毒感染者的污名化和歧视。这带来了艾滋病毒感染者失去动力和参与与医疗保健提供者共同治疗的风险。显然需要进行更大规模的研究,以确定污名化的原因,并找到预防污名化的方法。

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