Banda Devender R, Carter Stacy L, Nguyen The
Department of Special Education, Texas Tech University, Lubbock, TX, USA.
Department of Curriculum and Instruction, Texas Tech University, Lubbock, TX, USA.
Int J Dev Disabil. 2022 Dec 5;70(5):857-864. doi: 10.1080/20473869.2022.2152967. eCollection 2024.
Parents have long been concerned with the transition to adulthood of their children with intellectual and developmental disability (IDD) particularly with financial issues. The purpose of this study was to explore the financial concerns of mothers of adults with IDD. Five mothers of adults with IDD participated in a focus group to share their experiences, opinions, concerns, and challenges related to finances. Five themes emerged from the qualitative data analysis: (a) job-related difficulties, (b) living expenses, (c) access to essential services, (d), skills deficits and/or challenging behavior, and (e) long-term care. Mothers in general indicated tremendous financial burdens, loss of income, and expressed concerns about long-term care of their children with IDD. These themes are discussed and implications for practice and research are provided.
长期以来，父母一直担心他们患有智力和发育障碍（IDD）的孩子向成年期过渡的问题，尤其是财务问题。本研究的目的是探讨患有IDD的成年人的母亲在财务方面的担忧。五位患有IDD的成年人的母亲参加了一个焦点小组，分享她们在财务方面的经历、观点、担忧和挑战。定性数据分析得出了五个主题：（a）与工作相关的困难，（b）生活费用，（c）获得基本服务的机会，（d）技能缺陷和/或具有挑战性的行为，以及（e）长期护理。母亲们总体上表示承受着巨大的经济负担、收入损失，并对患有IDD的孩子的长期护理表示担忧。本文将对这些主题进行讨论，并提供对实践和研究的启示。
