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作为葡萄牙的年轻照顾者:照顾对青少年生活满意度的影响。

Being a Young Carer in Portugal: The Impact of Caring on Adolescents' Life Satisfaction.

机构信息

Centro de Investigação em Psicologia para o Desenvolvimento, Universidade Lusíada, 4100-348 Porto, Portugal.

Portincarers Associação Cuidadores Portugal, 4200-249 Porto, Portugal.

出版信息

Int J Environ Res Public Health. 2023 Nov 3;20(21):7017. doi: 10.3390/ijerph20217017.

DOI:10.3390/ijerph20217017
PMID:37947573
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10648131/
Abstract

Caring for an ill or disabled relative can present significant challenges that may exceed the personal resources of the caregiver. Young carers (YCs) often take on this role, providing support to family members or friends, which can have far-reaching effects on various aspects of their lives. This study involved 235 adolescents, 106 YCs, and 129 non-carers (NCs), who completed questionnaires assessing life satisfaction, satisfaction with social support, family functioning, academic functioning, and caregiving activities. Tests of group differences (MANOVA and MANCOVA controlling for age) showed YCs had more caregiving activities than NCs (as expected) and, critically, significantly lower life satisfaction. Hierarchical regressions with the YCS subsample showed academic functioning, social support, and the negative impact of caregiving were associated with life satisfaction, and that the negative influence of caregiving was linked to family functioning and the quantity of caregiving activities. For NCs, academic functioning, satisfaction with social support, and family functioning were associated with life satisfaction. In conclusion, caregiving in adolescents appears to be linked to lower life satisfaction, but this effect is determined by their social support, academic functioning, and negative impact of caring, which in turn depends on their family functioning and amount of caring activities.

摘要

照顾生病或残疾的亲属会带来重大挑战,这些挑战可能超出照顾者的个人能力。年轻照顾者(YCs)经常承担这一角色,为家庭成员或朋友提供支持,这对他们生活的各个方面都会产生深远的影响。本研究涉及 235 名青少年、106 名 YCs 和 129 名非照顾者(NCs),他们完成了评估生活满意度、社会支持满意度、家庭功能、学业功能和照顾活动的问卷。组间差异检验(MANOVA 和 MANCOVA 控制年龄)显示,YCs 的照顾活动比 NCs 多(正如预期的那样),而且生活满意度显著降低。对 YCs 子样本进行的分层回归显示,学业功能、社会支持以及照顾的负面影响与生活满意度相关,而照顾的负面影响与家庭功能和照顾活动的数量有关。对于 NCs,学业功能、对社会支持的满意度和家庭功能与生活满意度相关。总之,青少年的照顾行为似乎与较低的生活满意度有关,但这种影响取决于他们的社会支持、学业功能和照顾的负面影响,而这些又取决于他们的家庭功能和照顾活动的数量。

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本文引用的文献

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Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries: Lessons Learned from the ME-WE Project.招募青少年年轻照顾者参与六个欧洲国家的心理社会支持干预研究:ME-WE 项目的经验教训。
Int J Environ Res Public Health. 2023 Mar 14;20(6):5074. doi: 10.3390/ijerph20065074.
2
Factors Associated with the Quality-of-Life of Young Unpaid Carers: A Systematic Review of the Evidence from 2003 to 2019.与年轻无酬照顾者生活质量相关的因素:2003 年至 2019 年证据的系统评价。
Int J Environ Res Public Health. 2023 Mar 9;20(6):4807. doi: 10.3390/ijerph20064807.
3
Visibility as a Key Dimension to Better Health-Related Quality of Life and Mental Health: Results of the European Union Funded "ME-WE" Online Survey Study on Adolescent Young Carers in Switzerland.可视性作为提高健康相关生活质量和心理健康的关键维度:瑞士青少年年轻照顾者的欧盟资助“ME-WE”在线调查研究的结果。
Int J Environ Res Public Health. 2023 Feb 23;20(5):3963. doi: 10.3390/ijerph20053963.
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Young Adult Carers in the UK-New Evidence from the UK Household Longitudinal Study.英国青年照顾者——来自英国家庭纵向研究的新证据
Int J Environ Res Public Health. 2022 Oct 28;19(21):14076. doi: 10.3390/ijerph192114076.
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The mental and physical health of young carers: a systematic review.年轻照顾者的身心健康:系统评价。
Lancet Public Health. 2022 Sep;7(9):e787-e796. doi: 10.1016/S2468-2667(22)00161-X.
6
Research and Innovation for and with Adolescent Young Carers to Influence Policy and Practice-The European Union Funded "ME-WE" Project.青少年照料者的研究与创新:影响政策与实践——欧盟资助的“ME-WE”项目。
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