Min Joonhong, Her Young, Moon Ki Won, Park Ji In, Kim Sunmi, Cho Eun-Hee, Lim Kyu-Hyoung, Kwon Jae-Woo
Department of Dermatology, Kangwon National University School of Medicine, Chuncheon, Korea.
Department of Internal Medicine, Kangwon National University School of Medicine, Chuncheon, Korea.
Allergy Asthma Immunol Res. 2023 Nov;15(6):837-845. doi: 10.4168/aair.2023.15.6.837.
Chronic urticaria (CU) is a common problem with a high disease burden that has a significant negative impact on quality of life. Many patients are undertreated, and awareness of management strategies is low among clinicians. The present study aimed to improve understanding of CU from the patients' perspective, including the disease burden and current healthcare system use. Adult patients who presented to our referral hospital for CU treatment completed self-report questionnaires about demographics, clinical characteristics of CU, the impact of CU on daily life, unmet needs, and the history of medical service usage. This self-report survey included 127 participants (females, 57.0%; mean age, 42.0 ± 13.6 years; mean CU duration, 1.8 ± 3.4 years); 51.6% reported frequent discomfort with CU in daily life, including 44.1% of those who reported a good response to medication. More than half of the respondents reported a depressed mood and anxiety. Although 46.4% of the respondents reported that urticaria completely disappeared while on medication, only 10% were satisfied with the CU management provided by primary care hospitals. The principal cause of dissatisfaction was that they did not know the cause of CU (68.4% of patients). In total, 55% of the patients visited 2 or more hospitals before presenting to our referral hospital and 6.3% had tried folk remedies. In conclusion, most patients report that CU is not adequately controlled. Therefore, in addition to appropriate medication, information on the cause of CU, long-term treatment plan, medication safety, and expected prognosis is required to meet patients' needs.
慢性荨麻疹（CU）是一个常见问题，疾病负担高，对生活质量有重大负面影响。许多患者治疗不足，临床医生对管理策略的认识较低。本研究旨在从患者角度提高对CU的理解，包括疾病负担和当前医疗系统的使用情况。到我们的转诊医院接受CU治疗的成年患者完成了关于人口统计学、CU的临床特征、CU对日常生活的影响、未满足的需求以及医疗服务使用史的自我报告问卷。这项自我报告调查包括127名参与者（女性占57.0%；平均年龄42.0±13.6岁；平均CU病程1.8±3.4年）；51.6%的人报告在日常生活中经常因CU感到不适，其中44.1%的人报告对药物治疗反应良好。超过一半的受访者报告有情绪低落和焦虑。虽然46.4%的受访者报告在服药期间荨麻疹完全消失，但只有10%的人对基层医院提供的CU管理感到满意。不满的主要原因是他们不知道CU的病因（68.4%的患者）。总共有55%的患者在到我们的转诊医院就诊之前去过两家或更多医院，6.3%的人尝试过民间疗法。总之，大多数患者报告CU没有得到充分控制。因此，除了适当的药物治疗外，还需要提供关于CU病因、长期治疗计划、药物安全性和预期预后的信息，以满足患者的需求。
