J Hosp Palliat Nurs. 2024 Apr 1;26(2):82-90. doi: 10.1097/NJH.0000000000000999. Epub 2023 Nov 13.
Demographic shifts toward an older and sicker prison population present challenges for corrections leaders and incarcerated people. The priority of custody and control over care in prisons can deprive people of a modicum of autonomy even about expressing their end-of-life wishes. This study was undertaken to inform best practices and identify essential components of end-of-life care planning (EOLCP) for people who will likely die incarcerated. Individual interviews with formerly incarcerated people (n = 16) provided insights on EOLCP knowledge, perceptions, and future plans as each reflected on experiences while incarcerated. Zoom Video Communications were used for the interviews, and audio recordings were transcribed verbatim, verified, and deidentified prior to thematic analysis. Themes were defined and discussed until consensus was reached between the 2 researchers. End-of-life care planning themes included the following: understanding of and experience with advanced directives/care planning (AD/ACP), defining AD/ACP, timing of AD/ACP accessibility to health care resources, how to approach EOLCP in prison, advantages of EOLCP, and barriers to EOLCP. Formerly incarcerated peoples' knowledge, perceptions, and future plans revealed important considerations when developing a contextually relevant toolkit for EOLCP for people living in prison.
人口结构向老龄化和病态化的监狱人口转变，给监狱管理者和被监禁者带来了挑战。监狱内的监管和控制优先于关怀，这可能剥夺人们的基本自主权，甚至是表达临终意愿的自主权。本研究旨在为那些可能在狱中去世的人提供临终关怀规划（EOLCP）的最佳实践信息，并确定其基本要素。对 16 名前囚犯进行了个人访谈，了解他们对 EOLCP 的知识、看法和未来计划，因为他们每个人都在反思入狱期间的经历。Zoom Video Communications 用于访谈，在进行主题分析之前，对音频记录进行逐字转录、验证和去识别。在两位研究人员达成共识之前，对主题进行了定义和讨论。临终关怀规划的主题包括：对高级指令/关怀计划（AD/ACP）的理解和经验、AD/ACP 的定义、医疗资源获取 AD/ACP 的时间、如何在监狱中进行 EOLCP、EOLCP 的优势以及 EOLCP 的障碍。曾被监禁者的知识、看法和未来计划揭示了在为监狱中的人制定相关的临终关怀规划工具包时需要考虑的重要因素。
