J Hosp Palliat Nurs. 2024 Aug 1;26(4):E115-E123. doi: 10.1097/NJH.0000000000001031. Epub 2024 Apr 26.
A person-centered approach to advance care planning is recognized as a fundamental need, yet its routine implementation remains a challenge across disparate settings, such as prisons. The purpose of this study was to gain the perspectives of people who are incarcerated about advance care planning. Four focus groups were conducted with people living in 1 men's and 1 women's state prison (n = 26). Handwritten field notes were taken, transcribed, deidentified, and verified before the completion of independent thematic analysis by 2 experienced qualitative researchers. Key themes regarding advance care planning were identified: components of advance care planning, initiation and continuation of advance care planning, barriers to implementing advance care planning, and facilitators to implementing advance care planning. Participants noted several key components related to the name, structure, and content of advance care planning programs. Insights about who should initiate the conversation, when to continue the conversation, and how to deliver education about advance care planning were obtained. Findings contribute to identifying best practices for infusing advance care planning into prisons. Best practices will inform the development of a toolkit of contextually relevant, person-centered approaches to advance care planning that are tailored to meet the unique needs of people who are incarcerated.
以患者为中心的临终关怀计划方法已被认为是一项基本需求,但在不同环境(例如监狱)中,其常规实施仍然具有挑战性。本研究旨在了解被监禁者对预先护理计划的看法。在完成独立的主题分析之前,对 1 名男性和 1 名女性州立监狱中的 26 人进行了 4 次焦点小组讨论(n = 26)。经验丰富的 2 名定性研究人员对现场笔记进行了手写,转录,匿名处理和验证。预先护理计划的主要主题包括:预先护理计划的组成部分,预先护理计划的启动和延续,实施预先护理计划的障碍以及实施预先护理计划的促进因素。参与者指出了与预先护理计划计划的名称,结构和内容有关的几个关键组成部分。了解了谁应该发起对话,何时继续对话以及如何提供有关预先护理计划的教育。研究结果有助于确定将预先护理计划融入监狱的最佳实践。最佳实践将为预先护理计划制定一套切合实际,以患者为中心的工具包提供信息,以满足被监禁者的独特需求。