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本文引用的文献

1
A Survey of State Correctional Health Care Providers on Advance Care Planning: Opportunity for Collaboration With Corrections.州惩教医疗服务提供者对预先医疗护理计划的调查:与惩教部门合作的机会。
Am J Hosp Palliat Care. 2024 Sep;41(9):1051-1057. doi: 10.1177/10499091241226638. Epub 2024 Jan 27.
2
Disproportionate Death Rates Reported in US Prisons Early in the COVID-19 Pandemic.新冠疫情早期美国监狱报告的死亡率过高。
JAMA. 2024 Jan 16;331(3):190. doi: 10.1001/jama.2023.25770.
3
End-of-Life Care Planning: Perspectives of Returning Citizens.末期医疗照护规划:回归公民的观点。
J Hosp Palliat Nurs. 2024 Apr 1;26(2):82-90. doi: 10.1097/NJH.0000000000000999. Epub 2023 Nov 13.
4
Ten Urgent Priorities Based on Lessons Learned From More Than a Half Million Known COVID-19 Cases in US Prisons.基于从美国监狱超过 50 万例已知 COVID-19 病例中吸取的经验教训,提出十个紧急优先事项。
Am J Public Health. 2021 Jun;111(6):1099-1105. doi: 10.2105/AJPH.2021.306221. Epub 2021 Apr 15.
5
Identifying barriers and facilitators to implementing advance care planning in prisons: a rapid literature review.识别监狱中实施预先护理计划的障碍和促进因素:一项快速文献综述。
Health Justice. 2020 Sep 21;8(1):22. doi: 10.1186/s40352-020-00123-5.
6
Thematic analysis of qualitative data: AMEE Guide No. 131.定性数据分析的主题分析:AMEE 指南第 131 号。
Med Teach. 2020 Aug;42(8):846-854. doi: 10.1080/0142159X.2020.1755030. Epub 2020 May 1.
7
"We Take Care of Patients, but We Don't Advocate for Them": Advance Care Planning in Prison or Jail.我们照顾病人,但不为他们发声:监狱中的预先医疗护理计划。
J Am Geriatr Soc. 2018 Dec;66(12):2382-2388. doi: 10.1111/jgs.15624. Epub 2018 Oct 9.
8
Agency behind bars: Advance care planning with aging and dying offenders.监禁机构中的临终关怀规划:为老年和垂死罪犯提供预先护理计划。
Death Stud. 2018 Jan;42(1):45-51. doi: 10.1080/07481187.2017.1303552. Epub 2017 Mar 29.

预先医疗指示:在监人士的观点。

Advance Care Planning: Perspectives of People Living in Prison.

出版信息

J Hosp Palliat Nurs. 2024 Aug 1;26(4):E115-E123. doi: 10.1097/NJH.0000000000001031. Epub 2024 Apr 26.

DOI:10.1097/NJH.0000000000001031
PMID:38683576
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11608072/
Abstract

A person-centered approach to advance care planning is recognized as a fundamental need, yet its routine implementation remains a challenge across disparate settings, such as prisons. The purpose of this study was to gain the perspectives of people who are incarcerated about advance care planning. Four focus groups were conducted with people living in 1 men's and 1 women's state prison (n = 26). Handwritten field notes were taken, transcribed, deidentified, and verified before the completion of independent thematic analysis by 2 experienced qualitative researchers. Key themes regarding advance care planning were identified: components of advance care planning, initiation and continuation of advance care planning, barriers to implementing advance care planning, and facilitators to implementing advance care planning. Participants noted several key components related to the name, structure, and content of advance care planning programs. Insights about who should initiate the conversation, when to continue the conversation, and how to deliver education about advance care planning were obtained. Findings contribute to identifying best practices for infusing advance care planning into prisons. Best practices will inform the development of a toolkit of contextually relevant, person-centered approaches to advance care planning that are tailored to meet the unique needs of people who are incarcerated.

摘要

以患者为中心的临终关怀计划方法已被认为是一项基本需求,但在不同环境(例如监狱)中,其常规实施仍然具有挑战性。本研究旨在了解被监禁者对预先护理计划的看法。在完成独立的主题分析之前,对 1 名男性和 1 名女性州立监狱中的 26 人进行了 4 次焦点小组讨论(n = 26)。经验丰富的 2 名定性研究人员对现场笔记进行了手写,转录,匿名处理和验证。预先护理计划的主要主题包括:预先护理计划的组成部分,预先护理计划的启动和延续,实施预先护理计划的障碍以及实施预先护理计划的促进因素。参与者指出了与预先护理计划计划的名称,结构和内容有关的几个关键组成部分。了解了谁应该发起对话,何时继续对话以及如何提供有关预先护理计划的教育。研究结果有助于确定将预先护理计划融入监狱的最佳实践。最佳实践将为预先护理计划制定一套切合实际,以患者为中心的工具包提供信息,以满足被监禁者的独特需求。