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成年人在注册数字健康应用程序时报告性取向和性别认同意愿的研究:一项横断面定量研究。

Adults' willingness to report sexual orientation and gender identity when registering for a digital health application: A cross-sectional quantitative study.

机构信息

Included Health, San Francisco, CA, United States of America.

出版信息

PLoS One. 2023 Nov 20;18(11):e0292739. doi: 10.1371/journal.pone.0292739. eCollection 2023.

DOI:10.1371/journal.pone.0292739
PMID:37983232
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10659155/
Abstract

The collection of patient sexual orientation and gender identity information is crucial in identifying and addressing disparities in healthcare access, quality, and outcomes for sexual and gender minority individuals. While some studies have explored patients' willingness to disclose this information in specific settings, little is known about response rates in digital health applications. In light of the growing use of digital health, including virtual care, we sought to determine whether adults would respond to optional sexual orientation and gender identity fields during registration for a digital health application offered through their employer-provided benefits. We analyzed response rates for sexual orientation and gender identity by age, race and ethnicity, and region among individuals over age 17 between September 9th and December 31, 2022. Our study, which included over 41,000 commercially-insured adults from all 50 states, found that nearly 80% were willing to report their sexual orientation and gender identity. However, we observed higher nonresponse rates among older adults and individuals living in central and southern regions, with no consistent pattern by race and ethnicity. Our findings indicate that digital health applications could be a valuable resource for collecting this data from a diverse group of adults. Nevertheless, digital health companies must ensure that they use the data responsibly, identifying quality improvement initiatives and contributing to research that can inform health policies for sexual and gender minority individuals.

摘要

收集患者的性取向和性别认同信息对于识别和解决性少数群体和性别多样化个体在医疗保健获取、质量和结果方面的差异至关重要。虽然有些研究探讨了患者在特定环境下披露这些信息的意愿,但对于数字健康应用程序中响应率知之甚少。鉴于数字健康(包括虚拟护理)的日益普及,我们试图确定成年人在通过雇主提供的福利注册数字健康应用程序时,是否会对性取向和性别认同的可选字段做出响应。我们分析了 2022 年 9 月 9 日至 12 月 31 日期间,41000 多名年龄在 17 岁以上的个人的年龄、种族和民族以及地区对性取向和性别认同的响应率。我们的研究包括来自全美 50 个州的近 41000 名商业保险成年人,发现近 80%的人愿意报告他们的性取向和性别认同。然而,我们观察到年龄较大的成年人和居住在中部和南部地区的成年人的非响应率较高,但种族和民族之间没有一致的模式。我们的研究结果表明,数字健康应用程序可能是从不同群体的成年人那里收集这些数据的有价值的资源。然而,数字健康公司必须确保他们负责任地使用这些数据,确定质量改进举措,并为性少数群体和性别多样化个体的健康政策提供信息。

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Adults' willingness to report sexual orientation and gender identity when registering for a digital health application: A cross-sectional quantitative study.成年人在注册数字健康应用程序时报告性取向和性别认同意愿的研究:一项横断面定量研究。
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本文引用的文献

1
A Call for the Collection of Data on Sexual Orientation and Gender Identity for Surgical Research-What We Don't Know Can Hurt Us.呼吁收集性取向和性别认同数据用于外科研究——我们所不知道的可能会伤害我们。
JAMA Surg. 2023 Feb 1;158(2):111-112. doi: 10.1001/jamasurg.2022.3950.
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Achieving the Triple Aim for Sexual and Gender Minorities.实现性少数群体和性别少数群体的三重目标。
N Engl J Med. 2022 Jul 28;387(4):294-297. doi: 10.1056/NEJMp2204569. Epub 2022 Jul 23.
3
Refusal Rates to Sexual Orientation and Gender Identity Items in the Behavioral Risk Factor Surveillance System, 2014-2019.2014-2019 年行为风险因素监测系统中对性取向和性别认同项目的拒绝率。
Am J Public Health. 2022 Mar;112(3):443-452. doi: 10.2105/AJPH.2021.306625.
4
Sexual Orientation and Gender Identity Data Collection at US Health Centers: Impact of City-Level Structural Stigma in 2018.美国健康中心的性取向和性别认同数据收集:2018 年城市层面结构性耻辱的影响。
Am J Public Health. 2021 Nov;111(11):2059-2063. doi: 10.2105/AJPH.2021.306414. Epub 2021 Sep 9.
5
Still in the Dark Regarding the Public Health Impact of COVID-19 on Sexual and Gender Minorities.对新冠病毒病(COVID-19)对性少数群体和性别少数群体的公共卫生影响仍一无所知。
Am J Public Health. 2021 Sep;111(9):1606-1609. doi: 10.2105/AJPH.2021.306397. Epub 2021 Aug 19.
6
Acceptability and Feasibility of Collecting Sexual Orientation and Expanded Gender Identity Data in Urology and Oncology Clinics.在泌尿科和肿瘤科诊所收集性取向和扩展性别认同数据的可接受性和可行性。
LGBT Health. 2021 Aug-Sep;8(6):420-426. doi: 10.1089/lgbt.2020.0256. Epub 2021 Aug 4.
7
Sexual Orientation And Gender Identity Data.性取向与性别认同数据。
Health Aff (Millwood). 2021 May;40(5):852. doi: 10.1377/hlthaff.2021.00255.
8
"Do I feel safe revealing this information to you?": Patient perspectives on disclosing sexual orientation and gender identity in healthcare.“我向您透露这些信息感到安全吗?”:患者对在医疗保健中披露性取向和性别认同的看法。
J Am Coll Health. 2020 Aug-Sep;68(6):617-623. doi: 10.1080/07448481.2019.1583663. Epub 2019 Mar 25.
9
What Sexual and Gender Minority People Want Researchers to Know About Sexual Orientation and Gender Identity Questions: A Qualitative Study.性少数群体(Sexual and Gender Minority,SGM)希望研究人员了解关于性取向和性别认同问题的研究:一项定性研究。
Arch Sex Behav. 2020 Oct;49(7):2301-2318. doi: 10.1007/s10508-020-01810-y. Epub 2020 Sep 1.
10
A review of lesbian, gay, bisexual, trans and intersex (LGBTI) health and healthcare inequalities.对女同性恋、男同性恋、双性恋、跨性别和间性(LGBTI)人群的健康和医疗保健不平等现象的综述。
Eur J Public Health. 2019 Oct 1;29(5):974-980. doi: 10.1093/eurpub/cky226.