Division of Epidemiology and Community Health, School of Public Health, University of Minnesota, Minneapolis, Minnesota, USA.
Fenway Institute, Fenway Health, Boston, Massachusetts, USA.
LGBT Health. 2021 Aug-Sep;8(6):420-426. doi: 10.1089/lgbt.2020.0256. Epub 2021 Aug 4.
We evaluated the acceptability and feasibility of collecting sexual orientation and gender identity (SOGI) data in oncology and urology clinical settings. We surveyed 101 urology and 104 oncology clinic patients with a standardized sexual orientation question with six response options, "lesbian, gay, or homosexual;" "straight or heterosexual;" "bisexual;" "something else;" "do not know;" and "choose not to disclose." Next, we added the sexual orientation question and an expanded gender identity question to the electronic medical record (EMR) and analyzed data on the first 450 urology and 103 oncology patients. Acceptability and feasibility were assessed based on responses to the survey and patient intake forms. In the acceptability survey, only 3% of urology and 4% of oncology patients selected "choose not to disclose." Over 90% of patients in both clinics assessed the sexual orientation question as understandable and easy to answer. In all, 79% of urology and 73% of oncology patients stated they would answer it in their EMR, but only 56% of urology and 54% of oncology patients described the information as important. Sexual minority patients were as likely as heterosexual patients to state they would answer the question. Only 5% of patients selected "choose not to disclose" for sexual orientation, and <1% for the expanded gender identity question. Adding SOGI questions to the EMR appears to be acceptable and feasible and the sexual orientation question was understandable to a large majority of urology and oncology patients. ClinicalTrials.gov ID: NCT03343093.
我们评估了在肿瘤学和泌尿科临床环境中收集性取向和性别认同（SOGI）数据的可接受性和可行性。我们调查了 101 名泌尿科和 104 名肿瘤科患者，使用标准化的性取向问题，有六个回答选项：“女同性恋、男同性恋或同性恋”；“异性恋或异性恋”；“双性恋”；“其他”；“不知道”；“选择不披露”。然后，我们在电子病历（EMR）中添加了性取向问题和扩展的性别认同问题，并分析了前 450 名泌尿科和 103 名肿瘤科患者的数据。可接受性和可行性是根据调查和患者入院表格的回复来评估的。在可接受性调查中，只有 3%的泌尿科和 4%的肿瘤科患者选择“选择不披露”。超过 90%的患者认为这两个科室的性取向问题都易于理解和回答。在所有患者中，79%的泌尿科和 73%的肿瘤科患者表示他们会在 EMR 中回答这个问题，但只有 56%的泌尿科和 54%的肿瘤科患者认为这些信息很重要。性少数群体患者与异性恋患者一样表示他们会回答这个问题。只有 5%的患者选择“选择不披露”他们的性取向，不到 1%的患者选择“选择不披露”扩展的性别认同问题。将 SOGI 问题添加到 EMR 似乎是可以接受和可行的，并且大多数泌尿科和肿瘤科患者都能够理解性取向问题。临床试验编号：NCT03343093。
