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多动症“患者及公众”参与和投身研究的重要考量因素

Important Considerations for ADHD 'Patient and Public' Involvement and Engagement in Research.

作者信息

French B, Price A, Salimi A, Russell A

机构信息

School of Psychology, University of Nottingham, Nottingham, UK.

School of Medicine, University of Nottingham, Nottingham, UK.

出版信息

Med Res Arch. 2023 Oct;11(10):4477. doi: 10.18103/mra.v11i10.4477. Epub 2023 Oct 25.

Abstract

In this letter, we summarise key points of learning from research projects on attention deficit hyperactivity disorder (ADHD) that have had patient and public involvement and engagement (PPIE) as a key part of the research process. We share learning from our experiences in delivering research working with PPIE groups with ADHD, as top tips for researchers. Our aim is to highlight the importance of including lived-experience in ADHD research, share learning and highlight some of the (potentially invisible) differences in functioning that someone with ADHD can experience in relation to attentional focus, organisation, and time management. Specifically, how these might impact working practices of PPIE groups that include people with ADHD.

摘要

在这封信中,我们总结了关于注意力缺陷多动障碍(ADHD)研究项目的关键学习要点,这些项目将患者和公众参与及介入(PPIE)作为研究过程的关键部分。我们分享在与患有ADHD的PPIE群体合作开展研究过程中的经验教训,作为给研究人员的重要提示。我们的目的是强调在ADHD研究中纳入实际生活经验的重要性,分享经验教训,并突出ADHD患者在注意力集中、组织和时间管理方面可能经历的一些(潜在的无形)功能差异。具体而言,这些差异可能如何影响包含ADHD患者的PPIE群体的工作实践。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/dfcf/7615329/b332edf52a79/EMS191337-f001.jpg

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本文引用的文献

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Considerations for patient and public involvement and engagement in health research.
Nat Med. 2023 Aug;29(8):1922-1929. doi: 10.1038/s41591-023-02445-x. Epub 2023 Jul 20.
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