Department of Pediatrics, Division of Endocrinology and Diabetes, Stanford University School of Medicine, Stanford, California, USA.
Stanford Diabetes Research Center, Stanford University School of Medicine, Stanford, California, USA.
Diabet Med. 2024 May;41(5):e15254. doi: 10.1111/dme.15254. Epub 2023 Nov 27.
Both parent and adolescent involvement in type 1 diabetes management are critical during adolescence. The current study sought to understand the factors associated with parent and adolescent satisfaction with their own and one another's involvement in diabetes management.
Cross-sectional baseline data from 157 parent-adolescent dyads enrolled in an RCT were used. Adolescent ages ranged from 12 to 19 (M = 14.7, SD = 1.89) and were balanced by gender (50.3% male). Paired t-tests examined concordance between parent and adolescent satisfaction, bivariate correlations identified correlates, and regressions examined unique associations.
Roughly, 43% of adolescents and 29% of parents were very satisfied with adolescent involvement in diabetes management, whereas 71% of adolescents and 26.1% of parents were very satisfied with parent involvement. Indicators of better glycaemic health (via higher percent time-in-range and lower HbA1c and percent time in hyperglycaemia) and psychosocial functioning (less diabetes distress and depression) were correlated with higher satisfaction. Parent satisfaction with adolescent involvement was higher among older adolescents (R = 0.198, p = 0.013). Non-Hispanic white youth were more satisfied with their own involvement than youth of colour (t(149) = -2.783, p = 0.003). Both percent time-in-range and one's own diabetes distress uniquely related to parent and adolescent satisfaction with adolescent involvement. Conversely, parent satisfaction with their own involvement was only uniquely associated with parent diabetes distress.
Both adolescent and parents' satisfaction with adolescents' involvement in self-management are indicators of both glycaemic control and psychosocial well-being, whereas parents' self-evaluations are more closely tied to diabetes-specific distress.
在青少年时期，父母和青少年双方参与 1 型糖尿病管理都至关重要。本研究旨在了解与父母和青少年对自身和彼此参与糖尿病管理的满意度相关的因素。
本研究使用了一项 RCT 中纳入的 157 对父母-青少年对子的横断面基线数据。青少年年龄在 12 至 19 岁之间（M=14.7，SD=1.89），性别均衡（50.3%为男性）。配对 t 检验用于检验父母和青少年满意度之间的一致性，相关分析用于确定相关因素，回归分析用于检验独特的关联。
大约 43%的青少年和 29%的父母对青少年参与糖尿病管理非常满意，而 71%的青少年和 26.1%的父母对父母参与非常满意。更好的血糖健康指标（通过更高的时间在目标范围内的百分比和更低的 HbA1c 和高血糖时间百分比）和心理社会功能（更少的糖尿病困扰和抑郁）与更高的满意度相关。年龄较大的青少年的父母对青少年参与的满意度更高（R=0.198，p=0.013）。非西班牙裔白人青少年对自身参与的满意度高于有色人种青少年（t(149)=-2.783，p=0.003）。时间在目标范围内的百分比和自身的糖尿病困扰都与父母和青少年对青少年参与的满意度具有独特的相关性。相反，父母对自身参与的满意度仅与父母的糖尿病困扰具有独特的相关性。
青少年和父母对青少年自我管理参与的满意度都是血糖控制和心理社会健康的指标，而父母的自我评估与糖尿病特定的困扰更为密切相关。
