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1型糖尿病管理中患者及家庭角色的发展变化

Developmental changes in the roles of patients and families in type 1 diabetes management.

作者信息

Markowitz Jessica T, Garvey Katharine C, Laffel Lori M B

机构信息

Pediatric, Adolescent, & Youth Adult Section, Joslin Diabetes Center, Boston, MA, USA.

出版信息

Curr Diabetes Rev. 2015;11(4):231-8. doi: 10.2174/1573399811666150421114146.

Abstract

Developmentally-tailored diabetes self-care education and support are integral parts of contemporary multidisciplinary T1D care. The patient with T1D must have the support of the family and the diabetes team to maintain the rigors of diabetes management, but the specific roles of patients and families with regard to daily diabetes tasks change considerably throughout the developmental span of early childhood, middle childhood/school-age years, and adolescence. This review provides a framework of key normative developmental issues for each of these developmental stages. Within this context, ideal family diabetes management is reviewed within each developmental stage and anticipated challenges that can arise during these stages and that can adversely impact diabetes management are presented. This paper also summarizes empirical evidence for specific intervention and care strategies to support optimal diabetes management across these stages in order to maximize opportunities for a successful transfer of diabetes management tasks from parents to maturing youth. Finally, the review provides an emphasis on approaches to promote family teamwork and adolescent diabetes self-care adherence as well as opportunities to use novel technology platforms as a means to support optimal diabetes management.

摘要

针对不同发育阶段量身定制的糖尿病自我管理教育与支持是当代多学科1型糖尿病(T1D)护理的重要组成部分。患有T1D的患者必须得到家庭和糖尿病治疗团队的支持,以维持糖尿病管理的严格要求,但在幼儿期、童年中期/学龄期和青春期的整个发育过程中,患者及其家庭在日常糖尿病管理任务方面的具体角色会发生很大变化。本综述为这些发育阶段中的每一个提供了关键的规范性发育问题框架。在此背景下,回顾了每个发育阶段的理想家庭糖尿病管理情况,并阐述了在这些阶段可能出现的、会对糖尿病管理产生不利影响的预期挑战。本文还总结了支持各阶段最佳糖尿病管理的具体干预措施和护理策略的实证证据,以便最大限度地增加将糖尿病管理任务从父母成功转移给逐渐成熟的青少年的机会。最后,该综述强调了促进家庭协作和青少年糖尿病自我管理依从性的方法,以及利用新型技术平台支持最佳糖尿病管理的机会。

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