Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry, Universidade Federal do Rio de Janeiro, Brazil.
Department of Political Sociology, Universidade Federal de Santa Catarina, Brazil.
J Aging Stud. 2023 Dec;67:101193. doi: 10.1016/j.jaging.2023.101193. Epub 2023 Nov 18.
The study aimed to explore the impact of Alzheimer's disease (AD) on spouse-carer's lives and the ways it affects their marital relationship and sexual activity. Data were obtained from qualitative interviews conducted with 11 spouse-carers of people with AD. Using interpretative phenomenological analysis (IPA), three themes emerged: psychological and emotional impact, social impact, and sexual impact. Some spouse-carers reported stress, poor emotional well-being, frustration, doubts about how to deal with the situation, sadness, loneliness, perception of losing connection with the partner, and feelings of companionship disappearing. Meanwhile, other spouse-carers reported closer relations and greater affection for their care-recipients after the diagnosis. Changes in sexual activity were attributed to aging and/or the effects of the illness. Gender influenced the perception of changes in the marital relationship but not in sexual activity. Participants reported conflicting perspectives towards the importance of sexual activity in the marital relationship and the replacement of sexual intercourse with other modes of expressing affection. We believe that understanding the specificities of marital relationships of couples in whom one spouse was diagnosed with AD would be helpful for developing coping strategies for persons living with dementia and their spouses.
本研究旨在探讨阿尔茨海默病(AD)对配偶照顾者生活的影响,以及它对其婚姻关系和性生活的影响方式。数据来自对 11 名 AD 患者配偶照顾者进行的定性访谈。使用解释现象学分析(IPA),出现了三个主题:心理和情绪影响、社会影响和性影响。一些配偶照顾者报告说感到压力大、情绪不佳、沮丧、对如何应对这种情况感到困惑、悲伤、孤独、感觉与伴侣失去了联系,以及陪伴感消失。同时,其他配偶照顾者报告说,在诊断后,他们与被照顾者的关系更加密切,感情也更深了。性生活的变化归因于年龄增长和/或疾病的影响。性别影响对婚姻关系变化的看法,但不影响性生活。参与者对婚姻关系中性生活的重要性以及用其他方式表达感情来替代性交的看法存在冲突。我们认为,了解配偶一方被诊断患有 AD 的夫妻的婚姻关系的特殊性,将有助于为痴呆症患者及其配偶制定应对策略。