Srivastava Ujwal, Dasari Shobha, Shah Neha
Department of Computer Science, Stanford University, Stanford, CA, United States.
Division of Immunology and Rheumatology, Stanford School of Medicine, Stanford, CA, United States.
JMIR Form Res. 2023 Nov 28;7:e49358. doi: 10.2196/49358.
Patients fail to accurately remember 40% to 80% of medical information relayed during doctor appointments, and most standard after-visit summaries fail to effectively help patients comply with behaviors to manage their health conditions. The value of technology to empower and engage patients in their health management has been shown, and here we apply technology to help patients remember and act upon information communicated during their medical appointments.
We describe the development of WellNote, a digital notebook designed for patients to create a customized plan to manage their condition, plan for their appointments, track important actions (eg, medications and labs), and receive reminders for appointments and labs.
For this pilot, we chose to focus on rheumatoid arthritis, a chronic condition that relies on many of these features. The development of WellNote followed a structured method based on design thinking and co-design principles, with the app built in close collaboration with patients and a physician partner to ensure clinical relevance. Our design process consisted of 3 rounds: patient and physician interviews, visual prototypes, and a functional pilot app.
Over the course of the design process, WellNote's features were refined, with the final version being a digital notebook designed for patients with rheumatoid arthritis to manage their health by helping them track medications and labs and plan for appointments. It features several pages, like a dashboard, patient profile, appointment notes, preplanning, medication management, lab tracking, appointment archives, reminders, and a pillbox for medication visualization.
WellNote's active and structured note-taking features allow patients to clearly document the information from their physician without detracting from the conversation, helping the patient to become more empowered and engaged in their health management. The co-design process empowered these stakeholders to share their needs and participate in the development of a solution that truly solves pain points for these groups. This viewpoint highlights the role of digital health tools and the co-design of new health care innovations to empower patients and support clinicians.
患者无法准确记住在医生预约期间传达的40%至80%的医疗信息，而且大多数标准的就诊后总结未能有效帮助患者遵守管理其健康状况的行为。技术在增强患者健康管理能力并促使其参与方面的价值已得到证明，在此我们应用技术来帮助患者记住在医疗预约期间传达的信息并据此采取行动。
我们描述了WellNote的开发情况，这是一款为患者设计的数字笔记本，用于创建管理自身病情的定制计划、规划预约、跟踪重要行动（如药物和检查），并接收预约和检查提醒。
在本次试点中，我们选择专注于类风湿性关节炎，这是一种依赖许多此类功能的慢性病。WellNote的开发遵循基于设计思维和协同设计原则的结构化方法，该应用程序是与患者和医生合作伙伴密切合作构建的，以确保临床相关性。我们的设计过程包括三轮：患者和医生访谈、视觉原型以及功能性试点应用程序。
在设计过程中，WellNote的功能不断完善，最终版本是一款为类风湿性关节炎患者设计的数字笔记本，通过帮助他们跟踪药物和检查以及规划预约来管理自身健康。它有几个页面，如仪表板、患者资料、预约记录、预规划、药物管理、检查跟踪、预约存档、提醒以及用于药物可视化的药盒。
WellNote积极且结构化的笔记功能使患者能够清晰记录来自医生的信息，而不会干扰对话，有助于患者在健康管理中更有能力且更积极参与。协同设计过程使这些利益相关者能够分享他们的需求，并参与开发真正解决这些群体痛点的解决方案。这一观点凸显了数字健康工具以及新医疗创新协同设计在增强患者能力和支持临床医生方面的作用。
