Department of Care Ethics, University of Humanistic Studies, Utrecht, Netherlands.
Clinical Child and Family Studies and Amsterdam Public Health Research Institute, Vrije Universiteit, Amsterdam, Netherlands.
Disabil Rehabil Assist Technol. 2024 Oct;19(7):2545-2556. doi: 10.1080/17483107.2023.2293870. Epub 2023 Dec 19.
Meaningful interactions with significant others are crucial for children's well-being, including those with severe to profound intellectual and multiple disabilities. This study aimed to gain more insight into the potential of an ICT-Toolkit in enhancing or contributing to the interaction between parents and their children with complex care needs.
A multiple case study with an AB experimental design was conducted. Four mother-child dyads were observed during eight two-and-a-half-hour home visits. Children between 6 and 16 years with severe to profound intellectual and multiple disabilities were included. A participatory research observation approach was used.
Using the ICT-Toolkit compared to the baseline phase stimulated a decrease in the repetitive activities of two of the four dyads. Overall, the activity repertoire of the children and the length of time being engaged in individual activities increased, and the activities together increased in three of the dyads. There were more turn-taking interactions; the children took more initiative to engage their mother in their activity, and the children exhibited more affection when engaging with the ICT-Toolkit items. Three mothers followed their children more in their play, and all mothers were more verbally and physically active in instructing and/or motivating their children.
All mothers noticed their child's "new" behaviour when interacting with an ICT-Toolkit item. The mothers followed the child's lead when engaged with the ICT-Toolkit. The ICT-Toolkit's added effect may be due to the predictability, uncomplicated and highly perceivable stimuli it provides with minimal effort and maximum effect.
与重要他人进行有意义的互动对儿童的福祉至关重要,包括那些患有严重至极重度智力和多重残疾的儿童。本研究旨在更深入地了解 ICT 工具包在增强或促进有复杂护理需求的父母与其子女之间互动的潜力。
采用 AB 实验设计的多案例研究。在八次为期两个半小时的家访中,观察了四个母子对子。纳入的儿童年龄在 6 至 16 岁之间,患有严重至极重度智力和多重残疾。采用参与式研究观察方法。
与基线阶段相比,使用 ICT 工具包刺激了其中两个母子对子重复活动的减少。总体而言,儿童的活动范围和从事个人活动的时间增加,三个母子对子的共同活动增加。互动中的轮流次数更多;儿童更主动地让母亲参与他们的活动,当与 ICT 工具包项目互动时,儿童表现出更多的情感。三位母亲在孩子的游戏中更多地跟随他们,所有母亲在指导和/或激励孩子时更积极地参与口头和身体活动。
当与 ICT 工具包项目互动时,所有母亲都注意到了孩子的“新”行为。当与 ICT 工具包互动时,母亲会跟随孩子的引导。ICT 工具包的附加效果可能是由于它提供了可预测、不复杂且高度可感知的刺激,只需最小的努力即可获得最大的效果。