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中国大陆老年临终居家临终关怀需求问卷(HHCNQ-DE)的编制与验证

Development and Validation of the Home Hospice Care Needs Questionnaire for the Dying Old Adult (HHCNQ-DE) in Mainland China.

作者信息

Wang Lei, Li Yaru, Zhao Rui, Li Jiangxu, Gong Xiangru, Li Hongyu

机构信息

College of Nursing, Jinzhou Medical University, Jinzhou, China.

出版信息

Am J Hosp Palliat Care. 2024 Dec;41(12):1391-1399. doi: 10.1177/10499091231223486. Epub 2023 Dec 19.

DOI:10.1177/10499091231223486
PMID:38114232
Abstract

: Home hospice needs assessment is the key to the development of home hospice services. Therefore, there is a need to develop assessment tools in mainland China to meet the comprehensive needs of the old adult at the end of life. : To develop and validate a tool to assess Chinese mainland palliative care needs of the dying old adult at home. : Using the Harmony Nursing Theory as a theoretical framework, through reference to the China home hospice care needs scale, literature research, in-depth conversations with the dying old adult, and group discussions among members of the research team, 43 original questionnaire items were preliminarily drafted. A 31-item predictive questionnaire was formed through 2 rounds of expert review and small sample testing. From April to September 2023, 199 old adult at the end of life at home in Jinzhou, Liaoning Province were investigated to determine the reliability and validity of the questionnaire. : The final questionnaire included 31 items. Exploratory factor analysis extracted 5 common factors, and the cumulative variance contribution rate was 68.811%; the Cronbach's alpha coefficient of the total questionnaire was 0.832, and the re-test reliability was .806; the content validity index of the questionnaire was 0.982, and the content validity index of the items was 0.83-1.00. : The construction method of the HHCNQ-DE is scientific and reliable, with good reliability and validity, and it can be used as a tool to measure the needs of home hospice care in mainland China in the future.

摘要

居家临终关怀需求评估是居家临终关怀服务发展的关键。因此,中国大陆需要开发评估工具,以满足临终老年人的综合需求。

目的

开发并验证一种评估中国大陆居家临终老年患者姑息照护需求的工具。

方法

以和谐护理理论为理论框架,参考中国居家临终关怀需求量表,进行文献研究,与临终老年患者深入交谈,并在研究团队成员间进行小组讨论,初步拟定43个原始问卷条目。经两轮专家评审和小样本测试,形成了包含31个条目的预测试问卷。2023年4月至9月,对辽宁省锦州市199名居家临终老年患者进行调查,以确定问卷的信效度。

结果

最终问卷包含31个条目。探索性因子分析提取出5个共同因子,累积方差贡献率为68.811%;问卷总Cronbach's alpha系数为0.832,重测信度为0.806;问卷内容效度指数为0.982,各条目内容效度指数为0.83 - 1.00。

结论

居家临终关怀需求问卷-临终版(HHCNQ-DE)的构建方法科学可靠,具有良好的信效度,可作为未来测量中国大陆居家临终关怀需求的工具。

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Associated factors of home hospice care utilization by the terminally ill older adults: a mixed-methods study.临终老年人家居临终关怀服务利用的相关因素:一项混合方法研究。
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Development and psychometric evaluation of the needs assessment questionnaire for family caregivers of end-of-life older adults in home hospice care.居家临终关怀中临终老年人家庭照护者需求评估问卷的编制与心理测量学评价
Sci Rep. 2025 Apr 16;15(1):13146. doi: 10.1038/s41598-025-97475-5.
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Demystifying death: a qualitative study using the behavior change wheel framework to explore the palliative care education experiences of doctors, nurses, and community residents.
揭开死亡的神秘面纱:一项定性研究,运用行为改变轮框架探索医生、护士和社区居民的姑息治疗教育经历。
Front Public Health. 2025 Feb 7;13:1529317. doi: 10.3389/fpubh.2025.1529317. eCollection 2025.