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评估用于1型糖尿病自我管理的DigiBete应用程序:年轻人、家庭和医疗保健专业人员的体验。

Evaluation of the DigiBete App, a Self-Management App for Type 1 Diabetes: Experiences of Young People, Families, and Healthcare Professionals.

作者信息

Kime Nicky, Zwolinsky Steve, Pringle Andy

机构信息

Bradford Institute for Health Research, Temple Bank House, Bradford Royal Infirmary, Bradford BD9 6RJ, UK.

West Yorkshire & Harrogate Cancer Alliance, White Rose House, West Parade, Wakefield WF1 1LT, UK.

出版信息

Children (Basel). 2023 Dec 16;10(12):1933. doi: 10.3390/children10121933.

DOI:10.3390/children10121933
PMID:38136135
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10741907/
Abstract

Type 1 diabetes (T1DM) is a public health issue for children, young people, and families (CYPF) and requires innovative interventions. The DigiBete app is a self-management and educational app to help CYPF and healthcare professionals (HCPs) manage T1DM, featuring educational advice and resources such as guidance, quizzes, and educational and instructional videos on how to manage T1DM. To assess the impact and implementation of the app, the service-level evaluation deployed a mixed-methods design. App data were captured via the DigiBete platform and an online survey with a non-probability sample of HCPs (N = 178) and CYPF (N = 1165) = 1343. Overall, 55.7% (n = 512/919) of app users were female, and 4855 videos were viewed across the participating areas, with an average of 1213 videos per site (range 776-1679) and 4.4 videos per app user. The most popular videos were how to give a glucagon injection and "My Sick Day Rules", which showed what to do when CYPF were unwell due to T1DM. Interviews (n = 63) were undertaken with 38 CYPF and 25 HCPs. The findings indicate that CYPF and HCPs found the app an essential tool in the management of T1DM. CYPF and HCPs felt the app provided a valuable educational resource in a central location that was invaluable in an emergency or unknown situation. The app was a trusted and bona-fide source of information that could be accessed at any time. HCPs validated DigiBete in helping CYPF to manage their T1DM. At the same time, the app saved HCPs' service time and money and helped CYPF take back some of the control in managing their diabetes.

摘要

1型糖尿病(T1DM)是儿童、青少年及家庭(CYPF)面临的一个公共卫生问题,需要创新干预措施。DigiBete应用程序是一款自我管理和教育应用程序,可帮助CYPF和医疗保健专业人员(HCPs)管理T1DM,提供教育建议和资源,如指南、测验以及关于如何管理T1DM的教育和教学视频。为评估该应用程序的影响和实施情况,服务层面的评估采用了混合方法设计。通过DigiBete平台以及对HCPs(N = 178)和CYPF(N = 1165)的非概率抽样进行在线调查,收集应用程序数据(N = 1343)。总体而言,应用程序用户中有55.7%(n = 512/919)为女性,参与地区共观看了4855个视频,每个站点平均观看1213个视频(范围776 - 1679),每个应用程序用户平均观看4.4个视频。最受欢迎的视频是如何注射胰高血糖素以及“我的患病日规则”,后者展示了CYPF因T1DM不适时该怎么做。对38名CYPF和25名HCPs进行了访谈(n = 63)。研究结果表明,CYPF和HCPs发现该应用程序是管理T1DM的重要工具。CYPF和HCPs认为该应用程序在一个中心位置提供了宝贵的教育资源,在紧急情况或不明情况下非常重要。该应用程序是一个可随时获取的、值得信赖的可靠信息来源。HCPs认可DigiBete在帮助CYPF管理T1DM方面的作用。同时,该应用程序节省了HCPs的服务时间和金钱,并帮助CYPF在糖尿病管理中重新获得了一些控制权。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d2a7/10741907/b97d76f776f3/children-10-01933-g010.jpg
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A framework for involving coproduction partners in research about young people with type 1 diabetes.涉及共同生产伙伴参与关于 1 型糖尿病青少年的研究的框架。
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