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自闭症少女和成年女性对其心理健康以及社会和情感幸福的决定因素的看法:一项基于生活经历的系统综述和主题综合分析

Perspectives of autistic adolescent girls and women on the determinants of their mental health and social and emotional well-being: A systematic review and thematic synthesis of lived experience.

作者信息

O'Connor Rachel Ag, Doherty Mary, Ryan-Enright Theresa, Gaynor Keith

机构信息

School of Psychology, University College Dublin, Republic of Ireland.

Health Service Executive, Republic of Ireland.

出版信息

Autism. 2024 Apr;28(4):816-830. doi: 10.1177/13623613231215026. Epub 2023 Dec 25.

Abstract

Difficulties with mental health and low levels of well-being are more common among autistic girls and women than non-autistic people, but we do not fully understand why. Research does not focus enough on what autistic girls and women could tell us about this. This review aims to summarise the studies where autistic girls and women explain things that affect their mental health and well-being to help us understand how to prevent these difficulties from developing. Three research databases were searched to find possibly relevant studies. There were 877 studies found, which two researchers screened according to particular criteria. They found 52 studies that could be included in this review. One researcher evaluated the quality of these studies and extracted the key information from them. This review summarises the views of 973 autistic girls and women aged between 13 and 70+. The findings from the 52 studies were analysed, and we found many factors that affect the mental health and well-being of autistic girls and women. These factors fall into two categories: (1) difficulties living in a world not designed for autistic people and (2) the impact of stigma due to being autistic.

摘要

与非自闭症患者相比,心理健康问题和幸福感较低的情况在自闭症女孩和女性中更为常见,但我们并不完全清楚原因。研究对自闭症女孩和女性能够告诉我们的这方面情况关注不足。本综述旨在总结自闭症女孩和女性解释影响其心理健康和幸福感因素的研究,以帮助我们了解如何预防这些问题的产生。检索了三个研究数据库以查找可能相关的研究。共找到877项研究,由两名研究人员根据特定标准进行筛选。他们发现52项研究可纳入本综述。一名研究人员评估了这些研究的质量,并从中提取关键信息。本综述总结了973名年龄在13岁至70多岁之间的自闭症女孩和女性的观点。对52项研究的结果进行了分析,我们发现了许多影响自闭症女孩和女性心理健康和幸福感的因素。这些因素分为两类:(1)生活在一个并非为自闭症患者设计的世界中的困难,以及(2)自闭症所带来的污名化影响。

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