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成年自闭症患者的社交网络类型及其与掌控感、生活质量和自闭症特征的关联。

Social Network Types in Autistic Adults and Its Associations with Mastery, Quality of Life, and Autism Characteristics.

作者信息

van den Heuvel Rinske M, Teunisse Jan-Pieter, Radhoe Tulsi A, van der Putten Wikke J, Torenvliet Carolien, Wen Si, Wensing Michel, Geurts Hilde M

机构信息

Leo Kannerhuis, Youz (Parnassia Group), Arnhem/Amsterdam, The Netherlands.

HAN University of Applied Sciences, Nijmegen, The Netherlands.

出版信息

J Autism Dev Disord. 2025 Jan 27. doi: 10.1007/s10803-025-06722-1.

Abstract

Research shows heterogeneity in experiences of social contact and social networks in autistic adults. In this study, we aim to identify clusters of social support networks and investigate associations of clusters with mastery, quality of life, and autism characteristics. Autistic adults (N = 381; 45.7% female) aged between 30 and 90 years completed questionnaires on social support characteristics, mastery, autism characteristics, and quality of life. A two-step cluster analysis was used to identify clusters based on social support network items. The cluster analysis revealed three clusters: Cluster 1 (n = 238) with two or more close persons, sometimes including a romantic partner; Cluster 2 (n = 102) with solely a romantic partner as close person; and Cluster 3 (n = 41) without any close persons. Level of emotional support was the most important clustering indicator. People in Cluster 3 reported lower quality of life regarding social relationships and mastery, autism characteristics, and other quality of life scales were similar across clusters. Absence or presence of close persons significantly impacts quality of life regarding social relationships in autistic adults, which highlights the importance of addressing (satisfaction with) social support. In order to enhance quality of life, offering social network interventions to increase social support seems especially relevant for autistic people belonging to Cluster 3.

摘要

研究表明,自闭症成年人在社交接触和社交网络体验方面存在异质性。在本研究中,我们旨在确定社会支持网络的集群,并调查这些集群与掌控感、生活质量和自闭症特征之间的关联。年龄在30至90岁之间的自闭症成年人(N = 381;45.7%为女性)完成了关于社会支持特征、掌控感、自闭症特征和生活质量的问卷调查。采用两步聚类分析方法,根据社会支持网络项目确定集群。聚类分析揭示了三个集群:集群1(n = 238)有两个或更多亲密的人,有时包括恋爱伴侣;集群2(n = 102)只有恋爱伴侣作为亲密的人;集群3(n = 41)没有任何亲密的人。情感支持水平是最重要的聚类指标。集群3中的人在社交关系和掌控感方面的生活质量较低,集群之间在自闭症特征和其他生活质量量表方面相似。亲密的人的有无对自闭症成年人的社交关系生活质量有显著影响,这凸显了处理(对)社会支持(的满意度)的重要性。为了提高生活质量,为属于集群3的自闭症患者提供增加社会支持的社交网络干预措施似乎尤为重要。

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