Dimtsu Assfaw Araya, Reinschmidt Kerstin M, Teasdale Thomas A, Stephens Lancer, Kleszynski Keith L, Dwyer Kathleen
Department of Neurology- Knight Alzheimer Disease Research Center, Washington University School of Medicine in St. Louis, St. Louis, USA.
Department of Health Promotion Sciences, University of Oklahoma Health Sciences Center- Hudson College of Public Health, Oklahoma, USA.
Home Health Care Serv Q. 2024 Apr-Jun;43(2):133-153. doi: 10.1080/01621424.2023.2299486. Epub 2023 Dec 26.
The primary purpose of this study was to explore the needs and challenges of African American family caregivers of People living with dementia (PLWD) from the perspective of service providers including healthcare and social service providers. The study conducted three online semi-structured focus group interviews with service providers ( = 15). Data were analyzed using Braun & Clarke's guide to thematic analysis approach. Five themes emerged from the analysis of the focus group data: (i) Inadequate information about resources; (ii) Dementia education; (iii) Burden of dementia on families; (iv) Limited financial support and funding; and (v) Suggestions for needed resources. Service providers expressed the lack of community-based dementia service and support programs in African American communities. Findings from the study indicated the need to provide culturally appropriate information on dementia caregiving. This study adds to the scope of knowledge by exploring the processes of seeking help and using services.
本研究的主要目的是从包括医疗保健和社会服务提供者在内的服务提供者的角度，探讨非裔美国家庭痴呆症患者照料者的需求和挑战。该研究对服务提供者（n = 15）进行了三次在线半结构化焦点小组访谈。使用布劳恩和克拉克的主题分析方法指南对数据进行了分析。焦点小组数据分析得出了五个主题：（i）资源信息不足；（ii）痴呆症教育；（iii）痴呆症给家庭带来的负担；（iv）有限的财政支持和资金；以及（v）对所需资源的建议。服务提供者表示非裔美国人社区缺乏基于社区的痴呆症服务和支持项目。该研究的结果表明需要提供关于痴呆症护理的文化适宜信息。本研究通过探索寻求帮助和使用服务的过程，拓宽了知识范围。
