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南非人工耳蜗植入儿童父母的体验:探索性研究。

Experiences of parents of children with cochlear implants in South Africa: an exploratory study.

机构信息

Department of Speech Pathology and Audiology, School of Human and Community Development, University of the Witwatersrand, Johannesburg, South Africa.

出版信息

Disabil Rehabil. 2024 Oct;46(21):5044-5051. doi: 10.1080/09638288.2023.2297924. Epub 2023 Dec 27.

Abstract

PURPOSE

Cochlear implantation is a well-established option for early intervention. Children with hearing impairment and their parents are users of intervention services, with parents being more suited to provide insight into their experiences. The purpose of the current study was to describe the experiences of parents of children with cochlear implants (CIs) in the South African context.

METHODS

A qualitative research design was employed. Non-probability, purposive sampling was used. Seven, online semi-structured interviews were conducted with parents of children with CIs. Data were analysed using inductive thematic analysis.

RESULTS

Participants expressed feelings of certainty and assurance in the CI journey. Participants extended gratitude to the healthcare professionals involved in their children's CI journey. Feelings of doubt and stress were noted when coming to terms with the decision of cochlear implantation and financial stressors were noted as a challenge. Many participants found it challenging transitioning their children into school.

CONCLUSIONS

Parents conveyed having no regrets with their decision of cochlear implantation for their child and were grateful for the support provided by healthcare professionals. However, financial, and educational challenges remain. Findings suggest the need for more financial support for cochlear implantation in South Africa, and for adequate inclusive educational settings.

摘要

目的

人工耳蜗植入是一种成熟的早期干预选择。听力受损的儿童及其父母是干预服务的使用者,而父母更适合提供他们的经验见解。本研究的目的是描述南非背景下人工耳蜗植入(CI)儿童父母的体验。

方法

采用定性研究设计。使用非概率、目的性抽样方法。对 7 名接受过人工耳蜗植入的儿童的家长进行了在线半结构化访谈。使用归纳主题分析方法对数据进行分析。

结果

参与者在 CI 之旅中表达了确定性和安心的感觉。参与者对参与他们孩子 CI 之旅的医疗保健专业人员表示感谢。在决定接受耳蜗植入时感到怀疑和压力,同时还注意到经济压力是一个挑战。许多参与者发现让孩子过渡到学校很有挑战性。

结论

父母表示对他们为孩子做出的耳蜗植入决定没有遗憾,并对医疗保健专业人员提供的支持表示感谢。然而,经济和教育方面的挑战仍然存在。研究结果表明,南非需要更多的耳蜗植入经济支持,并需要提供充足的包容性教育环境。

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