Suppr超能文献

南非的人工耳蜗植入决策:家长的观点、障碍及影响因素

Cochlear Implant Decisions in South Africa: Parental Views, Barriers, and Influences.

作者信息

Khoza-Shangase Katijah, Bent Jasmine

机构信息

Department of Audiology, School of Human & Community Development, University of the Witwatersrand, Johannesburg 2050, South Africa.

出版信息

Healthcare (Basel). 2025 Apr 1;13(7):787. doi: 10.3390/healthcare13070787.

Abstract

: Cochlear implants (CIs) have become a widely used intervention for Deaf and hard-of-hearing (DHH) children, particularly for developing spoken language. However, parental decision-making regarding CIs is influenced by a range of factors, including socio-economic status, healthcare accessibility, cultural beliefs, and societal attitudes. While extensive research on parental perceptions of CIs exists in high-income countries (HICs), there is limited research on these perspectives in low- and middle-income countries (LMICs), like South Africa, where disparities in healthcare access significantly impact CI uptake. : This study aimed to explore the views and perceptions of South African parents regarding CIs for their DHH children, with a specific focus on how financial, cultural, and informational barriers influence decision-making. : A mixed-methods approach was used, combining Q-methodology for quantitative data and thematic analysis for qualitative insights. Nine parents of DHH children participated. The Q-set survey ranked parental attitudes toward CI risks, benefits, and accessibility, while semi-structured interviews provided deeper insights into decision-making processes. Factor analysis grouped participants into clusters based on their perceptions, and qualitative data were analysed using a thematic framework approach. : Findings revealed two distinct parental clusters: (a) Cluster 1 parents viewed CIs as essential for speech development and strongly supported implantation, and (b) Cluster 2 parents recognized CI benefits but emphasized that outcomes vary based on individual circumstances. Three overarching themes emerged from thematic analysis: (1) financial barriers restricting CI access, (2) parental reliance on medical professionals for decision-making, and (3) persistent stigma and cultural beliefs influencing CI perceptions. : This study highlights critical barriers to CI access in South Africa, including socio-economic inequities, limited healthcare infrastructure, and persistent stigma. While parents largely recognized the benefits of CIs, their decisions were shaped by financial constraints and concerns about Deaf identity and societal acceptance. This study calls for the expansion of publicly funded CI programmes, the development of culturally tailored parental counselling protocols, and targeted public awareness campaigns to reduce stigma surrounding hearing restoration devices. These interventions can help mitigate financial and cultural barriers to CI adoption in South Africa.

摘要

人工耳蜗已成为广泛应用于失聪和听力障碍儿童的干预手段,尤其是在发展口语能力方面。然而,家长关于人工耳蜗的决策受到一系列因素的影响,包括社会经济地位、医疗服务可及性、文化信仰和社会态度。虽然在高收入国家对家长对人工耳蜗的看法已有广泛研究,但在低收入和中等收入国家,如南非,对这些观点的研究有限,在南非,医疗服务可及性的差异对人工耳蜗的采用有重大影响。

本研究旨在探讨南非家长对其失聪和听力障碍儿童使用人工耳蜗的看法和观点,特别关注经济、文化和信息障碍如何影响决策。

采用了混合方法,将用于定量数据的Q方法与用于定性洞察的主题分析相结合。九位失聪和听力障碍儿童的家长参与了研究。Q组调查对家长对人工耳蜗风险、益处和可及性的态度进行了排名,而半结构化访谈则深入了解了决策过程。因子分析根据参与者的看法将他们分为不同类别,定性数据则使用主题框架方法进行分析。

研究结果揭示了两个不同的家长类别

(a)第1类家长认为人工耳蜗对言语发展至关重要,并强烈支持植入;(b)第2类家长认识到人工耳蜗的益处,但强调结果因个体情况而异。主题分析得出了三个总体主题:(1)限制人工耳蜗可及性的经济障碍;(2)家长在决策时依赖医疗专业人员;(3)持续存在的耻辱感和文化信仰影响对人工耳蜗的看法。

本研究突出了南非人工耳蜗可及性的关键障碍,包括社会经济不平等、有限的医疗基础设施和持续的耻辱感。虽然家长在很大程度上认识到人工耳蜗的益处,但他们的决策受到经济限制以及对聋人身份和社会接受度的担忧的影响。本研究呼吁扩大公共资助的人工耳蜗项目,制定针对不同文化的家长咨询方案,以及开展有针对性的公众宣传活动,以减少围绕听力恢复设备的耻辱感。这些干预措施有助于减轻南非在采用人工耳蜗方面的经济和文化障碍。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f550/11988570/8131247557aa/healthcare-13-00787-g001.jpg

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验