Department of Pediatric Neurology , Gaziantep University School of Medicine , Gaziantep, Turkey.
Department of Public Health, Gazi University School of Medicine, Ankara, Turkey.
Epilepsy Behav. 2024 Feb;151:109597. doi: 10.1016/j.yebeh.2023.109597. Epub 2024 Jan 5.
To evaluate the quality of available information on Youtube videos about VNS as a "source of health information" for patients with drug resistant epilepsy.
Youtube videos were searched and screened using the terms "VNS for seizures," and "VNS surgery," "VNS epilepsy" in May 2023. The quality of the videos was evaluated the Quality Criteria for Consumer Health Information (DISCERN) and Global Quality Scale (GQS). The videos were analyzed in terms of content, accuracy, reliability, and quality.
A total of 104 videos were searched. After excluding duplicate or inappropriate videos, 51 videos were analyzed. Youtube videos about vagal nerve stimulation are mostly on general information, surgical procedures, patient experiences and magnet use. When video sources are examined according to the quality, according to GQS, 75 % of high quality videos were narrated by physicians, all intermediate quality videos were narrated by physicians, and low quality ones narrated by physicians were 47.4 % and 28.9 % by the patients. All of the videos narrated by the patients were of low quality. There was a significant and strong correlation between GQS and Discern score (r = 0.807, p < 0.001). Only GQS scores of videos with different content were found to be statistically significant (p < 0.05). Two pediatric neurologists independently reviewed the videos and classified the videos as useful or misleading according to the GQS, DISCERN scala. The overall κ value for interobserver consistency according to Global Quality Scale was 0.781 (p < 0.001). (95 % confidence interval), indicating a very good level of agreement.
Youtube videos may provide a worthful source for patients and parents seeking to find more information about VNS However incorrect information could easily be disseminated by high number of views of videos with low quality. High skilled and experienced professionals should create videos on Youtube to ensure that patients and parents can access more useful, high-quality, and accurate information on VNS.
评估 YouTube 视频中关于迷走神经刺激（VNS）作为耐药性癫痫患者“健康信息来源”的可用信息的质量。
2023 年 5 月，使用“癫痫发作的 VNS”和“VNS 手术”、“VNS 癫痫”等术语在 YouTube 上搜索和筛选视频。使用消费者健康信息质量标准（DISCERN）和全球质量量表（GQS）评估视频质量。从内容、准确性、可靠性和质量方面对视频进行分析。
共搜索到 104 个视频。排除重复或不适当的视频后，分析了 51 个视频。关于迷走神经刺激的 YouTube 视频主要是关于一般信息、手术程序、患者体验和磁铁使用。根据质量检查视频来源，根据 GQS，75%的高质量视频由医生解说，所有中等质量的视频由医生解说，低质量的视频中由医生解说的分别为 47.4%和 28.9%，由患者解说的为低质量。所有由患者解说的视频质量都较低。GQS 和 Discern 评分之间存在显著且强的相关性（r=0.807，p<0.001）。仅发现不同内容视频的 GQS 评分具有统计学意义（p<0.05）。两名儿科神经科医生独立审查视频，并根据 GQS 和 Discern 量表将视频分类为有用或误导。根据全球质量量表，观察者间一致性的总体κ值为 0.781（p<0.001）（95%置信区间），表明存在非常好的一致性水平。
YouTube 视频可能为寻求了解更多 VNS 信息的患者和家长提供有价值的来源。但是，低质量视频的高浏览量可能会轻易传播错误信息。应让高技能和经验丰富的专业人员在 YouTube 上制作视频，以确保患者和家长可以访问更多关于 VNS 的有用、高质量和准确的信息。
