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加利福尼亚大学洛杉矶分校琼森综合癌症中心(UCLA JCCC)生存护理计划的历史和现状。

History and current status of the survivorship care program at the University of California, Los Angeles Jonsson Comprehensive Cancer Center (UCLA JCCC).

机构信息

School of Nursing, UCLA, 4-234 Factor Building, Box 956900, Los Angeles, CA, 90095-6900, USA.

Center for Cancer Control and Prevention Research Jonsson Comprehensive Cancer Center, UCLA, Los Angeles, CA, USA.

出版信息

J Cancer Surviv. 2024 Feb;18(1):5-10. doi: 10.1007/s11764-023-01522-x. Epub 2024 Jan 6.

Abstract

As one of the first comprehensive cancer centers to receive a designation from the National Cancer Institute, the Jonsson Comprehensive Cancer Center at UCLA Health has served as a leader in survivorship research for three decades. A clinical survivorship program for childhood cancer survivors was established in the early 2000s as this became a standard of care in pediatric oncology. However, it was not until receipt of external funding and the establishment of a Survivorship Center of Excellence in 2006 that clinical services were expanded to include adult cancer survivors, as well as survivorship care delivery research in the community and at affiliated clinical sites. When this funding ended, there was limited institutional support for expansion of the program, and so the clinical programs did not develop further. Recently, there has been renewed interest in obtaining Commission on Cancer accreditation, and this has prompted an institutional assessment of survivorship care to inform future activities for system-wide program development. As oncology care expands throughout a large regional health system network, the future survivorship program will need to serve as a common resource for the entire health system by providing a repository of specialized services and resources as well as standard processes and pathways for a cohesive approach to care. IMPLICATIONS FOR CANCER SURVIVORS: There are many challenges to development and sustainment of cancer survivorship programs, even in NCI-designated comprehensive cancers. As the delivery of cancer care services expands and becomes more integrated in large health care systems, innovative strategies are needed to ensure delivery of tailored care to cancer survivors through acute treatment and beyond.

摘要

作为首批获得美国国立癌症研究所(NCI)指定的综合性癌症中心之一,加州大学洛杉矶分校健康乔森综合癌症中心(Jonsson Comprehensive Cancer Center at UCLA Health)在生存研究方面已经领先了三十年。21 世纪初,作为儿科肿瘤学护理标准的一部分,建立了儿童癌症幸存者临床生存项目。然而,直到 2006 年获得外部资金并建立卓越生存中心,临床服务才扩展到包括成年癌症幸存者,以及社区和附属临床站点的生存护理交付研究。当这项资金结束时,由于机构对该项目的扩展支持有限,因此该临床项目没有进一步发展。最近,人们重新对获得癌症委员会认证产生了兴趣,这促使机构对生存护理进行评估,为未来的系统范围的项目发展提供信息。随着肿瘤学护理在大型区域卫生系统网络中不断扩展,未来的生存项目将需要通过提供专门服务和资源的资源库以及针对护理的凝聚力方法的标准流程和途径,为整个卫生系统提供一个共同的资源。对癌症幸存者的影响:即使在 NCI 指定的综合性癌症中心,癌症生存项目的发展和维持也面临着许多挑战。随着癌症护理服务的扩展和在大型医疗保健系统中变得更加综合,需要创新策略来确保通过急性治疗和后续治疗为癌症幸存者提供量身定制的护理。

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