Morgan Erin R, Dillard Denise, Lofgren Eric, Maddison Benetick Kabua, Riklon Sheldon, McElfish Pearl, Sinclair Ka Imi
Institute for Research and Education to Advance Community Health, Elson S. Floyd College of Medicine, Washington State University, Seattle, WA, USA.
Paul G. Allen School for Global Health, College of Veterinary Medicine, Washington State University, Pullman, WA, USA.
Contemp Clin Trials Commun. 2023 Dec 20;37:101246. doi: 10.1016/j.conctc.2023.101246. eCollection 2024 Feb.
Create a longitudinal, multi-modal and multi-level surveillance cohort that targets early detection of symptomatic and asymptomatic COVID-19 cases among Native Hawaiian and Pacific Islander adults in the Continental US and identify effective modalities for participatory disease surveillance and sustainably integrate them into ongoing COVID-19 and other public health surveillance efforts.
We recruited cohorts from three sites: Federal Way, WA; Springdale, AR; and remotely. Participants received a survey that included demographic characteristics and questions regarding COVID-19. Participants completed symptom checks via text message every month and recorded their temperature daily using a Kinsa smart thermometer.
Recruitment and data collection is ongoing. Presently, 441 adults have consented to participate. One-third of participants were classified as essential workers during the pandemic.
Over the past 18 months, we have improved our strategies to elicit better data from participants and have learned from some of the weaknesses in our initial deployment of this type of surveillance system. Other limitations stem from historic inequities and barriers which limited Native Hawaiian and Pacific Island representation in academic and clinical environments. One manifestation of this was the limited ability to provide study materials and support in multiple languages. We hope that continued partnership with the community will allow further opportunities to help restore trust in academic and medical institutions, thus generating knowledge to advance health equity.
This participatory disease surveillance mechanism complements traditional surveillance systems by engaging underserved communities. We may also gain insights generalizable to other pathogens of concern.
创建一个纵向、多模式和多层次的监测队列，旨在早期发现美国大陆本土夏威夷人和太平洋岛民成年人中的有症状和无症状新冠病毒疾病（COVID-19）病例，并确定参与式疾病监测的有效模式，并将其可持续地纳入正在进行的COVID-19和其他公共卫生监测工作中。
我们从三个地点招募队列：华盛顿州联邦韦市；阿肯色州斯普林代尔市；以及通过远程方式。参与者接受了一项调查，其中包括人口统计学特征和有关COVID-19的问题。参与者每月通过短信完成症状检查，并使用Kinsa智能体温计每天记录体温。
招募和数据收集工作正在进行中。目前，已有441名成年人同意参与。三分之一的参与者在疫情期间被归类为关键岗位工作者。
在过去的18个月里，我们改进了策略，以从参与者那里获取更好的数据，并从这类监测系统首次部署中的一些弱点中吸取了教训。其他限制源于历史上的不平等和障碍，这些不平等和障碍限制了本土夏威夷人和太平洋岛民在学术和临床环境中的代表性。其中一个表现是提供多种语言的学习材料和支持的能力有限。我们希望与社区持续的合作关系将带来更多机会，有助于恢复对学术和医疗机构的信任，从而产生推动健康公平的知识。
这种参与式疾病监测机制通过让服务不足的社区参与，补充了传统监测系统。我们也可能获得可推广到其他相关病原体的见解。
