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脊髓损伤患者在积极康复营中的经历。

Experiences of Participants with Spinal Cord Injury at an Active Rehabilitation Camp.

作者信息

Wilhelmsen Terese, Lannem Anne Marie, Sørensen Marit, Augutis Marika, Gustafsson Henrik

机构信息

Department of Educational Sciences, University of South-Eastern Norway, 3045 Drammen, Norway.

Research Department, Sunnaas Rehabilitation Hospital, 1450 Nesoddtangen, Norway.

出版信息

J Funct Morphol Kinesiol. 2023 Dec 25;9(1):7. doi: 10.3390/jfmk9010007.

DOI:10.3390/jfmk9010007
PMID:38249084
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10801526/
Abstract

This study explored the physical, social, and psychological benefits of an active rehabilitation (AR) camp as experienced by participants with spinal cord injury (SCI), and perceived fitness and mastery of being physically active six months after the camp. The study used a mixed-method design with pre- ( = 23), post- ( = 23), and follow-up questionnaires ( = 18) and individual interviews ( = 8). Fuzzy qualitative comparative analysis (fsQCA) was used to analyze the quantitative data and qualitative content analysis was used to analyze the qualitative data. Results showed that benefits were mainly experienced in the social and psychological domains. As for the physical domain, younger and more recently injured persons with tetraplegia reported more benefits. Six months after the camp, being in the preparation stage of change and being somewhat physically active were necessary and sufficient conditions for experiencing mastery of physical activity regardless of injury type, but only persons with paraplegia experienced fitness benefits. Qualitative data shed further light on the perceived benefits of the camp. The knowledge gained from this study might help practitioners to tailor interventions to individual needs and researchers to ask questions that take into consideration the complexity of active rehabilitation and changes in physical activity behavior for people with SCI.

摘要

本研究探讨了脊髓损伤(SCI)参与者所体验到的积极康复(AR)营在身体、社会和心理方面的益处,以及营期结束六个月后他们对身体健康状况和身体活动技能掌握程度的认知。该研究采用了混合方法设计,包括前测(n = 23)、后测(n = 23)和随访问卷(n = 18)以及个人访谈(n = 8)。运用模糊定性比较分析(fsQCA)对定量数据进行分析,采用定性内容分析对定性数据进行分析。结果表明,益处主要体现在社会和心理领域。在身体领域,年龄较小且近期受伤的四肢瘫痪者报告的益处更多。营期结束六个月后,无论损伤类型如何,处于改变的准备阶段且有一定身体活动量是体验到身体活动技能掌握的必要且充分条件,但只有截瘫患者体验到了身体适应性方面的益处。定性数据进一步揭示了参与者对该康复营益处的认知。本研究所得知识可能有助于从业者根据个体需求调整干预措施,并帮助研究人员提出考虑到SCI患者积极康复的复杂性和身体活动行为变化的问题。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2c5e/10801526/6546dae21c0f/jfmk-09-00007-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2c5e/10801526/6546dae21c0f/jfmk-09-00007-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2c5e/10801526/6546dae21c0f/jfmk-09-00007-g001.jpg

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本文引用的文献

1
Outcomes of peer mentorship for people living with spinal cord injury: perspectives from members of Canadian community-based SCI organizations.脊髓损伤患者同伴指导的结果:来自加拿大社区脊髓损伤组织成员的观点。
Spinal Cord. 2021 Dec;59(12):1301-1308. doi: 10.1038/s41393-021-00725-2. Epub 2021 Nov 3.
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The effectiveness of peer support on self-efficacy and self-management in people with type 2 diabetes: A meta-analysis.同伴支持对 2 型糖尿病患者自我效能和自我管理的有效性:荟萃分析。
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Physical activity interventions, chronic pain, and subjective well-being among persons with spinal cord injury: a systematic scoping review.
身体活动干预、慢性疼痛与脊髓损伤患者的主观幸福感:系统范围界定综述。
Spinal Cord. 2021 Feb;59(2):93-104. doi: 10.1038/s41393-020-00550-z. Epub 2020 Sep 18.
4
Investigating Characteristics of Quality Peer Mentors With Spinal Cord Injury.调查脊髓损伤质量同伴导师的特征。
Arch Phys Med Rehabil. 2019 Oct;100(10):1916-1923. doi: 10.1016/j.apmr.2019.04.019. Epub 2019 May 30.
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A scoping review of peer-led interventions following spinal cord injury.脊髓损伤后同伴主导干预措施的范围综述。
Spinal Cord. 2019 Aug;57(8):626-635. doi: 10.1038/s41393-019-0297-x. Epub 2019 May 23.
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Correspondence re "Evidence-based scientific exercise guidelines for adults with spinal cord injury: an update and new guideline".关于“脊髓损伤成人循证科学运动指南:更新与新指南”的通信
Spinal Cord. 2018 Apr;56(4):406-408. doi: 10.1038/s41393-017-0052-0. Epub 2018 Jan 18.
7
Evidence-based scientific exercise guidelines for adults with spinal cord injury: an update and a new guideline.脊髓损伤成人循证科学运动指南:更新版及新指南
Spinal Cord. 2018 Apr;56(4):308-321. doi: 10.1038/s41393-017-0017-3. Epub 2017 Oct 25.
8
Spinal Cord Injury Peer Mentorship: Applying Self-Determination Theory to Explain Quality of Life and Participation.脊髓损伤同伴指导:应用自我决定理论解释生活质量和参与度。
Arch Phys Med Rehabil. 2018 Mar;99(3):468-476.e12. doi: 10.1016/j.apmr.2017.08.487. Epub 2017 Sep 22.
9
Effects of exercise on fitness and health of adults with spinal cord injury: A systematic review.运动对脊髓损伤成年人身体素质和健康的影响:一项系统综述。
Neurology. 2017 Aug 15;89(7):736-745. doi: 10.1212/WNL.0000000000004224. Epub 2017 Jul 21.
10
Are adults with spinal cord injury meeting the spinal cord injury-specific physical activity guidelines? A look at a sample from a Canadian province.脊髓损伤的成年人是否符合脊髓损伤特定的体育活动指南?以加拿大一个省份的样本为例进行研究。
Spinal Cord. 2017 May;55(5):454-459. doi: 10.1038/sc.2016.181. Epub 2017 Jan 31.