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脊髓损伤后探索意义和目的的干预措施的共同设计。

Co-design of an intervention exploring meaning and purpose after spinal cord injury.

机构信息

Centre for Disability Research and Policy, Faculty of Health Sciences, The University of Sydney, Camperdown, Australia.

Spinal Cord Injuries Australia, Sydney, Australia.

出版信息

Disabil Rehabil. 2024 Nov;46(22):5243-5252. doi: 10.1080/09638288.2023.2300655. Epub 2024 Jan 23.

Abstract

PURPOSE

Rebuilding a strong sense of meaning and purpose following trauma is a vital contributor to post-traumatic growth and adapting well to a spinal cord injury. This project aimed to develop an intervention that used the concept of post-traumatic growth to foster a stronger sense of meaning and purpose in people with a spinal cord injury.

METHODS

Using participatory action research methodology, the intervention was designed in an iterative process with health professionals and people with lived experience of spinal cord injury. We developed a ten-week online group program and delivered two pilot programs to 13 participants. We used their feedback to further refine the program before finalisation.

RESULTS

A participatory action research approach resulted in a positive intervention well received by participants and consumer organisations. Feedback suggests the intervention shows promise for improvements in functional and psychosocial outcomes and has long-term viability.

CONCLUSIONS

The project successfully developed and delivered a novel program that uses the concept of post-traumatic growth to foster a stronger sense of meaning and purpose. Further implementation of the program with larger numbers will allow for evaluation of the program's effectiveness.

摘要

目的

在创伤后重新建立强烈的意义感和目标感是促进创伤后成长和适应脊髓损伤的重要因素。本项目旨在开发一种干预措施,利用创伤后成长的概念,在脊髓损伤患者中培养更强的意义感和目标感。

方法

使用参与式行动研究方法,该干预措施在健康专业人员和脊髓损伤患者的亲身经历的共同参与下,通过迭代过程进行设计。我们开发了一个为期十周的在线小组项目,并为 13 名参与者提供了两个试点项目。我们利用他们的反馈意见进一步完善了该方案,然后才定稿。

结果

参与式行动研究方法产生了积极的干预措施,深受参与者和消费者组织的欢迎。反馈表明,该干预措施有望改善功能和心理社会结局,并具有长期可行性。

结论

该项目成功开发并提供了一种新的方案,利用创伤后成长的概念来培养更强的意义感和目标感。该方案的进一步实施将为方案的有效性评估提供更大的样本量。

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