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什么是自闭症儿童的好母亲?美国与日本的跨文化比较。

What is a Good Mother of Children with Autism? A Cross-Cultural Comparison Between the U.S. and Japan.

作者信息

Porter Noriko, Loveland Katherine A, Honda Hannah, Yamane Takahiro

机构信息

Department of Early Childhood Education, College of Education, Hokuriku Gakuin University, Kanazawa, Japan.

Louis A. Faillace, MD Department of Psychiatry and Behavioral Sciences, University of Texas Health Science Center at Houston/McGovern Medical School, Houston, USA.

出版信息

J Autism Dev Disord. 2025 Feb;55(2):739-751. doi: 10.1007/s10803-023-06232-y. Epub 2024 Jan 24.

Abstract

This study compared the characteristics of 'good mothers' of children with ASD (Autism Spectrum Disorder) as perceived by mothers of children with ASD in two countries-the U.S. and Japan. Grounded in the theory of culturally-influenced construal of the self, we hypothesized that U.S. mothers would prioritize fostering self-reliance and advocating for their child's well-being while Japanese mothers would prioritize maintaining close and harmonious relationships with their child. We conducted semi-structured interviews with 52 U.S. and 51 Japanese mothers of children with ASD about the characteristics of a good mother of a child with ASD (GMA) and characteristics of a good mother in general (GMG) and compared the frequencies of 'good mother' categories emerging from thematic analysis. Mothers of children with ASD in both countries viewed guiding children as the most important characteristic for both GMG and GMA. As hypothesized, U.S mothers tended to emphasize a mother's active role in advocating for her children, getting her child services and intervention, and educating herself about ASD. In contrast, Japanese mothers tended to value a mother's ability to accept her child, know her child well, and provide adequate support for her child based on a child-oriented perspective. The mother's role of advocating for her child and educating herself emerged more frequently in responses regarding GMA than GMG in the U.S. sample. The study revealed cultural differences in characterization of GMA, suggesting that more indirect models of instruction may be effective for different cultural groups.

摘要

本研究比较了美国和日本这两个国家中患有自闭症谱系障碍(ASD)儿童的母亲所认为的“好母亲”的特征。基于受文化影响的自我建构理论,我们假设美国母亲会优先培养孩子的自立能力并倡导孩子的幸福,而日本母亲会优先与孩子保持亲密和谐的关系。我们对52位美国和51位日本患有ASD儿童的母亲进行了半结构化访谈,询问她们对于患有ASD儿童的好母亲(GMA)以及一般意义上好母亲(GMG)的特征,并比较了主题分析中出现的“好母亲”类别频率。两个国家患有ASD儿童的母亲都认为引导孩子是GMG和GMA最重要的特征。正如所假设的,美国母亲倾向于强调母亲在为孩子争取权益、为孩子获得服务和干预以及自我学习自闭症知识方面的积极作用。相比之下,日本母亲倾向于重视母亲从以孩子为导向的角度接受孩子、充分了解孩子并为孩子提供充分支持的能力。在美国样本中,母亲为孩子争取权益和自我学习的角色在关于GMA的回答中比在关于GMG的回答中出现得更频繁。该研究揭示了GMA特征方面的文化差异,表明更间接的教育模式可能对不同文化群体有效。

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