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作为一名患有阿斯伯格综合征孩子的母亲:女性的污名化经历。

Being the mother of a child with Asperger's syndrome: women's experiences of stigma.

作者信息

Gill Jessica, Liamputtong Pranee

机构信息

School of Public Health, La Trobe University, Bundoora, Victoria, Australia.

出版信息

Health Care Women Int. 2011 Aug;32(8):708-22. doi: 10.1080/07399332.2011.555830.

Abstract

In this article, we explore the experience of stigma amongst mothers of children who have Asperger's Syndrome (AS). Fifteen women participated in in-depth interviews; six produced a solicited diary that offered a more in-depth insight into the experiences of stigma amongst these mothers. We employed thematic analysis to analyze the data. We found that mothers perceived themselves to be stigmatized specifically in the school and community environments. Participants also compared their own experiences of stigma with other families with physically disabled children. Several strategies were established by these mothers in order to allow them to deal with this stigma better.

摘要

在本文中,我们探讨了患有阿斯伯格综合征(AS)儿童的母亲所面临的污名化经历。15名女性参与了深度访谈;其中6人撰写了一份应要求提供的日记,更深入地洞察了这些母亲所面临的污名化经历。我们采用主题分析法对数据进行分析。我们发现,母亲们认为自己在学校和社区环境中特别容易受到污名化。参与者还将自己的污名化经历与其他有身体残疾儿童的家庭进行了比较。这些母亲制定了几种策略,以便更好地应对这种污名。

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