Department of Pediatric Hematology/Oncology, Roger Maris Cancer Center, Sanford Health, Fargo, ND, USA.
Department of Pediatrics, University of Chicago, Chicago, IL, USA.
J Natl Cancer Inst. 2024 May 8;116(5):642-646. doi: 10.1093/jnci/djae013.
Data commons have proven to be an indispensable avenue for advancing pediatric cancer research by serving as unified information technology platforms that, when coupled with data standards, facilitate data sharing. The Pediatric Cancer Data Commons, the flagship project of Data for the Common Good (D4CG), collaborates with disease-based consortia to facilitate development of clinical data standards, harmonization and pooling of clinical data from disparate sources, establishment of governance structure, and sharing of clinical data. In the interest of international collaboration, researchers developed the Hodgkin Lymphoma Data Collaboration and forged a relationship with the Pediatric Cancer Data Commons to establish a data commons for pediatric Hodgkin lymphoma. Herein, we describe the progress made in the formation of Hodgkin Lymphoma Data Collaboration and foundational goals to advance pediatric Hodgkin lymphoma research.
数据共享已经被证明是推进儿科癌症研究的不可或缺的途径，它作为统一的信息技术平台，与数据标准相结合，促进了数据共享。儿科癌症数据共享是 Data for the Common Good (D4CG) 的旗舰项目，与基于疾病的联盟合作，促进临床数据标准的制定、来自不同来源的临床数据的协调和汇集、治理结构的建立以及临床数据的共享。为了进行国际合作，研究人员开发了霍奇金淋巴瘤数据协作，并与儿科癌症数据共享建立了关系，为儿科霍奇金淋巴瘤建立了一个数据共享平台。在此，我们描述了在形成霍奇金淋巴瘤数据协作方面所取得的进展以及推进儿科霍奇金淋巴瘤研究的基本目标。
