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加速儿科霍奇金淋巴瘤研究:霍奇金淋巴瘤数据协作组织(NODAL)。

Accelerating pediatric Hodgkin lymphoma research: the Hodgkin Lymphoma Data Collaboration (NODAL).

机构信息

Department of Pediatric Hematology/Oncology, Roger Maris Cancer Center, Sanford Health, Fargo, ND, USA.

Department of Pediatrics, University of Chicago, Chicago, IL, USA.

出版信息

J Natl Cancer Inst. 2024 May 8;116(5):642-646. doi: 10.1093/jnci/djae013.

Abstract

Data commons have proven to be an indispensable avenue for advancing pediatric cancer research by serving as unified information technology platforms that, when coupled with data standards, facilitate data sharing. The Pediatric Cancer Data Commons, the flagship project of Data for the Common Good (D4CG), collaborates with disease-based consortia to facilitate development of clinical data standards, harmonization and pooling of clinical data from disparate sources, establishment of governance structure, and sharing of clinical data. In the interest of international collaboration, researchers developed the Hodgkin Lymphoma Data Collaboration and forged a relationship with the Pediatric Cancer Data Commons to establish a data commons for pediatric Hodgkin lymphoma. Herein, we describe the progress made in the formation of Hodgkin Lymphoma Data Collaboration and foundational goals to advance pediatric Hodgkin lymphoma research.

摘要

数据共享已经被证明是推进儿科癌症研究的不可或缺的途径,它作为统一的信息技术平台,与数据标准相结合,促进了数据共享。儿科癌症数据共享是 Data for the Common Good (D4CG) 的旗舰项目,与基于疾病的联盟合作,促进临床数据标准的制定、来自不同来源的临床数据的协调和汇集、治理结构的建立以及临床数据的共享。为了进行国际合作,研究人员开发了霍奇金淋巴瘤数据协作,并与儿科癌症数据共享建立了关系,为儿科霍奇金淋巴瘤建立了一个数据共享平台。在此,我们描述了在形成霍奇金淋巴瘤数据协作方面所取得的进展以及推进儿科霍奇金淋巴瘤研究的基本目标。

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ACR Appropriateness Criteria Pediatric Hodgkin Lymphoma.ACR 适宜性标准:儿科霍奇金淋巴瘤。
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本文引用的文献

1
Children's Oncology Group's 2023 blueprint for research.儿童肿瘤研究组2023年研究蓝图。
Pediatr Blood Cancer. 2023 Sep;70 Suppl 6(Suppl 6):e30569. doi: 10.1002/pbc.30569. Epub 2023 Jul 11.
7
Pediatric Hodgkin Lymphoma, Version 3.2021.小儿霍奇金淋巴瘤,2021年第3版
J Natl Compr Canc Netw. 2021 Jun 30;19(6):733-754. doi: 10.6004/jnccn.2021.0027.

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