Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Goteborg, Sweden
University of Gothenburg Centre for Person-Centred Care (GPCC), Sahlgrenska Academy, University of Gothenburg, Goteborg, Sweden.
BMJ Open. 2024 Jan 31;14(1):e079229. doi: 10.1136/bmjopen-2023-079229.
This study aimed to elucidate the meaning of lived experiences of support from social networks and the healthcare sector in persons with chronic pain.
A qualitative, phenomenological hermeneutic method was used to analyse interview data.
Participants were recruited from patient organisations in Sweden.
Ten (seven women, two men and one non-binary) individuals with chronic musculoskeletal pain were included.
The meaning of lived experiences of support in persons with chronic pain involves balancing between being the most valuable player (MVP) and passing the ball, meaning balancing between being a capable person and accepting support to be that capable person.
For participants who lived with chronic pain, support means balancing between being capable (the MVP) and willing to accept support (passing the ball), which aligns with the concept of person-centred care. Our findings may be useful for policy-makers, managers and clinical professionals when planning and performing care for persons with chronic pain. Future research should focus on how the healthcare sector can create support to enable persons with chronic pain to be the MVP while being able to pass the ball to their social networks and the healthcare sector.
本研究旨在阐明慢性疼痛患者从社交网络和医疗保健领域获得支持的体验的意义。
采用定性、现象学诠释学方法对访谈数据进行分析。
参与者从瑞典的患者组织招募。
10 名（7 名女性，2 名男性，1 名非二元性别）慢性肌肉骨骼疼痛患者纳入研究。
慢性疼痛患者的支持体验的意义在于在充当最有价值球员（MVP）和传球之间取得平衡，即在保持能力和接受支持以保持这种能力之间取得平衡。
对于患有慢性疼痛的参与者来说，支持意味着在有能力（成为 MVP）和愿意接受支持（传球）之间取得平衡，这与以患者为中心的护理理念一致。我们的研究结果可能对政策制定者、管理者和临床专业人员规划和实施慢性疼痛患者护理具有参考价值。未来的研究应重点关注医疗保健部门如何创造支持，使慢性疼痛患者能够成为 MVP，同时能够将球传递给他们的社交网络和医疗保健部门。
