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蒙古唇裂/腭裂公众认知情况问卷调查

Questionnaire survey on public awareness of cleft lip with/without palate in Mongolia.

机构信息

Division of Research and Treatment for Oral and Maxillofacial Congenital Anomalies, Aichi Gakuin University, School of Dentistry, Nagoya, Japan.

Cleft Lip and Palate Center, Aichi Gakuin University Dental Hospital, Nagoya, Japan.

出版信息

Congenit Anom (Kyoto). 2024 Mar;64(2):40-46. doi: 10.1111/cga.12552. Epub 2024 Feb 3.

Abstract

The frequency of cleft lip with/without palate (CL/P) in the Mongolian population is approximately 1 in 1314 live births. This research aims to disseminate information about this congenital disability to the public to better understand CL/P, and people's fissures, and review administrative measures, as there is a lack of research in this area. A questionnaire survey was conducted using Google Forms, with 1000 Mongolian participants. Most participants (86.7%) said they had knowledge of the word, whereas 86.2% said they had knowledge of the condition. Most participants' answers were question-related disadvantages of CL/P patients, including statements such as "It's uncomfortable in human relationships" and "It makes an uncomfortable impression on the person you meet the first time." The results of this study revealed that most Mongolians were aware of CL/P and are concerned about patients. However, the causes of CL/P in the general population remain unknown, and further research is needed in this area.

摘要

蒙古人群中唇裂伴/不伴腭裂(CL/P)的发病率约为每 1314 例活产儿中有 1 例。本研究旨在向公众传播有关这种先天性残疾的信息,以更好地了解 CL/P 和人们的裂隙,并审查行政措施,因为该领域缺乏研究。本研究采用 Google Forms 对 1000 名蒙古参与者进行了问卷调查。大多数参与者(86.7%)表示知道这个词,而 86.2%的人表示知道这种情况。大多数参与者的回答与 CL/P 患者的相关问题有关,包括“人际关系不舒服”和“初次见面给人不舒服的印象”等说法。本研究结果表明,大多数蒙古人都知道 CL/P,并关心患者。然而,普通人群中 CL/P 的病因仍不清楚,这方面需要进一步研究。

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