Gorris Matthew A, Needham McKenzie L, Finnegan Kayla C, Obermiller Corey S, Witek Lauren, Randle Reese W, Burns Cynthia A
Division of Endocrinology and Metabolism, Atrium Health Wake Forest Baptist, Winston-Salem, NC, USA.
Wake Forest University School of Medicine, Winston-Salem, NC, USA.
J Patient Exp. 2024 Feb 4;11:23743735241229383. doi: 10.1177/23743735241229383. eCollection 2024.
Research surrounding tumor boards has focused on patient outcomes and care coordination. Little is known about the patient experience with tumor boards. This survey examined aspects of the patient experience for patients presented at our multidisciplinary endocrine tumor board (ETB). A 15-item survey was distributed via the online patient portal to patients over the age of 18 whose case had been discussed at our ETB over an 18-month period. Descriptive statistics were reported, and a Fisher's exact test was used to examine relationships between variables. A total of 47 patients completed the survey (46%). A majority (72%) report their provider explained what the ETB is, and 77% report being informed their case would be discussed. Most patients were satisfied their case was being discussed (72%). A number of patients did report moderate or severe anxiety knowing their case was being discussed (15%). Sixty-four percent of patients report the ETB recommendations were clearly explained; however, satisfaction with the recommendations was slightly lower (53%). Despite the somewhat low satisfaction with the recommendations, 75% of patients felt more confident in their treatment plan knowing their case was discussed. Finally, if given the chance, 66% responded that they would have been interested in participating in their own ETB discussion. This study provides some insight into the patient experience surrounding tumor board discussions. Overall, patients are satisfied when their case is discussed at ETB. Patients can also experience anxiety about these discussions, and many patients desire to be present for their own discussions.
围绕肿瘤专家会诊小组的研究主要集中在患者的治疗结果和护理协调方面。对于患者在肿瘤专家会诊小组中的体验，我们了解得很少。这项调查研究了在我们的多学科内分泌肿瘤专家会诊小组（ETB）中就诊的患者的体验情况。通过在线患者门户网站向18岁以上、其病例在18个月内在我们的ETB中进行过讨论的患者发放了一份包含15个条目的调查问卷。报告了描述性统计数据，并使用费舍尔精确检验来研究变量之间的关系。共有47名患者完成了调查（回复率为46%）。大多数患者（72%）表示其医生解释了ETB是什么，77%的患者表示被告知其病例将被讨论。大多数患者对正在讨论他们的病例感到满意（72%）。一些患者确实表示在知道自己的病例正在被讨论时感到中度或重度焦虑（15%）。64%的患者表示ETB的建议得到了清晰的解释；然而，对这些建议的满意度略低（53%）。尽管对建议的满意度有所偏低，但75%的患者在知道自己的病例被讨论后对治疗方案更有信心。最后，如果有机会，66%的患者表示他们会有兴趣参与自己病例在ETB中的讨论。这项研究为肿瘤专家会诊小组讨论中患者的体验提供了一些见解。总体而言，当患者的病例在ETB中被讨论时，他们是满意的。患者在这些讨论中也可能会感到焦虑，而且许多患者希望参与自己病例的讨论。
