Hamilton Alice, Jacob Rafik
Internal Medicine, University of Florida College of Medicine - Jacksonville, Jacksonville, USA.
Cureus. 2024 Jan 8;16(1):e51846. doi: 10.7759/cureus.51846. eCollection 2024 Jan.
This editorial explores the challenges faced by families with individuals with intellectual and developmental disabilities (IDD) when it comes to travel, drawing parallels with the difficulties experienced in attending routine doctor's appointments. The disruptions to routine, preparation of supplies, and the fear of unfamiliar environments often make travel seem like an unattainable dream for these families. Despite these challenges, some families showcase resilience and determination, managing to travel with their loved ones. The article emphasizes the inconsistency in experiences across families due to varying levels of cognition, adaptive functioning, financial means, and available support. It discusses the additional complications for families dealing with medical procedures, the scrutiny of strangers, and financial difficulties. The article suggests the crucial role of primary care physicians in facilitating travel for these families by performing pre-travel medical assessments, consulting social workers, and preparing comprehensive emergency plans. It proposes the need for collaboration between governments, the tourism industry, advocacy groups, and the community to address these challenges. Ultimately, the article advocates for the empowerment of families with IDD individuals to enjoy the world as tourists, with the support of their primary care providers.
这篇社论探讨了有智力和发育障碍(IDD)患者的家庭在旅行方面面临的挑战,并将其与去看常规医生预约时遇到的困难相类比。日常生活的中断、物资准备以及对陌生环境的恐惧,常常使旅行对这些家庭来说似乎是一个遥不可及的梦想。尽管存在这些挑战,一些家庭展现出了韧性和决心,成功地与他们所爱的人一起旅行。文章强调,由于认知水平、适应功能、经济状况和可获得的支持各不相同,各个家庭的经历存在差异。它讨论了家庭在应对医疗程序、陌生人的审视和经济困难时面临的额外复杂性。文章指出,初级保健医生通过进行旅行前的医疗评估、咨询社会工作者以及制定全面的应急预案,在帮助这些家庭旅行方面发挥着关键作用。它提出政府、旅游业、倡导团体和社区之间需要开展合作,以应对这些挑战。最终,文章倡导在初级保健提供者的支持下,赋予有IDD患者的家庭权力,使其能够作为游客享受世界。