Greally Suzanna, Oute Jeppe, McPherson Susan
School of Health and Social Care, University of Essex, Colchester, UK.
Department of People and Technology, Roskilde University, Roskilde, Denmark.
Fam Process. 2025 Mar;64(1):e13087. doi: 10.1111/famp.13087. Epub 2024 Nov 24.
In this paper, we present a qualitative meta-ethnographic synthesis of 26 articles reporting experiences of subjective burden in 389 parents of children with mental illnesses. The studies were identified through a systematic literature search of PubMed, CINAHL Ultimate, APA PsycInfo, and MedLine Ultimate. We conducted a quality appraisal and followed the seven stages of meta-ethnographic synthesis. We developed a line of argument synthesis in the form of a model that depicts the subjective, temporal, and psychological experiences of parents. The model proposes a cyclical process characterized by five stages, each depicting a transitional point in which parents re-evaluate their experiences: caring for an intimate stranger; turning point; unavoidable role; uncertain future; transcendence. This model highlights the complex psychological processes that parents endure when caring for a child with a mental illness. The review highlights several methodological issues in this field of research, including issues related to sampling, poor reporting of data analysis, limited critical appraisal, and a lack of reflexivity. Future research should address the gaps in the literature while also attending to the issues that have been highlighted by this review.
在本文中,我们对26篇文章进行了定性元民族志综合分析,这些文章报告了389名患有精神疾病儿童的父母的主观负担经历。这些研究是通过对PubMed、CINAHL Ultimate、APA PsycInfo和MedLine Ultimate进行系统的文献检索确定的。我们进行了质量评估,并遵循了元民族志综合的七个阶段。我们以一个模型的形式构建了一条论证综合路线,该模型描绘了父母的主观、时间和心理体验。该模型提出了一个以五个阶段为特征的循环过程,每个阶段都描绘了父母重新评估其经历的一个过渡点:照顾一个亲密的陌生人;转折点;不可避免的角色;不确定的未来;超越。该模型突出了父母在照顾患有精神疾病的孩子时所经历的复杂心理过程。该综述强调了该研究领域的几个方法学问题,包括与抽样相关的问题、数据分析报告不佳、批判性评估有限以及缺乏反思性。未来的研究应该填补文献中的空白,同时关注本综述所强调的问题。