Centre for Health Systems and Safety Research, Australian Institute of Health Innovation, Faculty of Medicine, Health and Human Sciences- Macquarie University, Level 6, 75 Talavera Road, Sydney, NSW, 2109, Australia.
Centre for Healthcare Resilience and Implementation Science, Australian Institute of Health Innovation, Faculty of Medicine, Health and Human Sciences Macquarie University, Level 6, 75 Talavera Road, Sydney, NSW, 2109, Australia.
Int J Equity Health. 2024 Feb 12;23(1):26. doi: 10.1186/s12939-024-02107-5.
Patient-reported experience measures (PREMs) are used to drive and evaluate unit and organisational-level healthcare improvement, but also at a population level, these measures can be key indicators of healthcare quality. Current evidence indicates that ethnically diverse communities frequently experience poorer care quality and outcomes, with PREMs data required from this population to direct service improvement efforts. This review synthesises evidence of the methods and approaches used to promote participation in PREMs among ethnically diverse populations.
A rapid evidence appraisal (REA) methodology was utilised to identify the disparate literature on this topic. A search strategy was developed and applied to three major electronic databases in July 2022 (Medline; PsycINFO and CINAHL), in addition to websites of health agencies in Organisation for Economic Co-operation and Development countries via grey literature searches. A narrative evidence synthesis was undertaken to address the review question.
The review resulted in 97 included studies, comprised 86 articles from electronic database searches and 11 articles from the grey literature. Data extraction and synthesis identified five strategies used in PREM instruments and processes to enhance participation among ethnically diverse communities. Strategies applied sought to better inform communities about PREMs, to create accessible PREMs instruments, to support PREMs completion and to include culturally relevant topics. Several methods were used, predominantly drawing upon bicultural workers, translation, and community outreach to access and support communities at one or more stages of design or administration of PREMs. Limited evidence was available of the effectiveness of the identified methods and strategies. PREMs topics of trust, cultural responsiveness, care navigation and coordination were identified as pertinent to and frequently explored with this population.
The findings provide a basis for a maturity model that may guide change to increase participation of ethnically diverse communities in PREMs. In the short-medium term, health systems and services must be able to recognise and respond to cultural and linguistic diversity in the population when applying existing PREMs. In the longer-term, by working in collaboration with ethnically diverse communities, systems and services may co-create adapted or novel PREMs that tackle the factors that currently inhibit uptake and completion among ethnically diverse communities.
患者报告的体验测量（PREMs）用于推动和评估单位和组织层面的医疗保健改进，而且在人群层面，这些测量方法可以成为医疗保健质量的关键指标。现有证据表明，种族多样化的社区经常体验到较差的护理质量和结果，因此需要从这一人群中获取 PREMs 数据，以指导服务改进工作。本综述综合了促进种族多样化人群参与 PREMs 的方法和途径的证据。
利用快速证据评估（REA）方法来确定关于这个主题的不同文献。制定并于 2022 年 7 月应用了一项搜索策略，该策略应用于三个主要的电子数据库（Medline；PsycINFO 和 CINAHL），此外还通过经济合作与发展组织国家的卫生机构网站进行了灰色文献搜索。进行了叙述性证据综合，以回答审查问题。
该综述共纳入了 97 项研究，其中 86 项来自电子数据库搜索的文章和 11 项来自灰色文献的文章。数据提取和综合确定了在 PREM 工具和流程中用于增强种族多样化社区参与度的五项策略。应用的策略旨在更好地向社区宣传 PREMs，创建可访问的 PREM 工具，支持 PREM 完成，并纳入与文化相关的主题。使用了几种方法，主要是利用双语工作者、翻译和社区外联来在设计或管理 PREMs 的一个或多个阶段接触和支持社区。现有关于所确定方法和策略有效性的证据有限。信任、文化响应性、护理导航和协调等 PREM 主题被确定为与这一人群相关，并经常在这一人群中进行探讨。
这些发现为一个成熟度模型提供了基础，该模型可能指导变革，以增加种族多样化社区参与 PREMs。在中短期，卫生系统和服务在应用现有 PREMs 时，必须能够识别和应对人口中的文化和语言多样性。在长期，通过与种族多样化社区合作，系统和服务可能会共同创建适应或新颖的 PREMs，解决目前阻碍种族多样化社区参与和完成 PREMs 的因素。
