Sydney Nursing School, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia; Charles Perkins Centre, The University of Sydney, Sydney, Australia.
Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia; Health Promotion Unit, Population Health Research & Evaluation Hub, Sydney Local Health District, Sydney, Australia.
Int J Med Inform. 2024 Apr;184:105372. doi: 10.1016/j.ijmedinf.2024.105372. Epub 2024 Feb 11.
Spontaneous coronary artery dissection (SCAD) survivors often seek information online. However, the quality and content of websites for SCAD survivors is uncertain. This review aimed to systematically identify and appraise websites for SCAD survivors.
A systematic review approach was adapted for websites. A comprehensive search of SCAD key-phrases was performed using an internet search engine during January 2023. Websites targeting SCAD survivors were included. Websites were appraised for quality using Quality Component Scoring System (QCSS) and Health Related Website Evaluation Form (HRWEF), suitability using the Suitability Assessment Method (SAM), readability using a readability generator, and interactivity. Content was appraised using a tool based on SCAD international consensus literature. Raw scores from tools were concerted to percentages, then classified variably as excellent through to poor.
A total of 50 websites were identified and included from 600 screened. Overall, content accuracy/scope (53.3 ± 23.3) and interactivity (67.1 ± 11.5) were poor, quality was fair (59.1 ± 22.3, QCSS) and average (83.1 ± 5.8, HRWEF) and suitability was adequate (54.9 ± 13.8, SAM). The mean readability grade was 11.6 (±2.3), far exceeding the recommendations of ≤ 8. By website type, survivor affiliated and medically peer-reviewed health information websites scored highest. Appraisal tools had limitations, such as overlapping appraisal of similar things and less relevant items due to internet modernity.
Many online websites are available for SCAD survivors, but often have limited and/or inaccurate content, poor quality, are not tailored to the demographic, and are difficult to read. Appraisal tools for health website require consolidation and further development.
自发性冠状动脉夹层 (SCAD) 幸存者通常会在网上搜索信息。然而，SCAD 幸存者网站的质量和内容尚不确定。本研究旨在系统地识别和评估 SCAD 幸存者的网站。
采用系统评价方法对网站进行评估。在 2023 年 1 月期间，使用互联网搜索引擎对 SCAD 关键短语进行了全面搜索。纳入针对 SCAD 幸存者的网站。使用质量成分评分系统 (QCSS) 和健康相关网站评估表 (HRWEF) 评估网站质量，使用适用性评估方法 (SAM) 评估适用性，使用可读性生成器评估可读性，并评估交互性。使用基于 SCAD 国际共识文献的工具评估内容。工具的原始分数转换为百分比，然后根据情况分为优秀到差。
共识别并纳入了 50 个网站，这些网站是从 600 个筛选出的。总的来说，内容准确性/范围（53.3±23.3）和交互性（67.1±11.5）较差，质量为中等（59.1±22.3，QCSS）和平均（83.1±5.8，HRWEF），适用性为充分（54.9±13.8，SAM）。平均可读性等级为 11.6（±2.3），远高于建议的≤8。按网站类型划分，幸存者附属和医学同行评审的健康信息网站得分最高。评估工具存在局限性，例如相似内容的重叠评估和由于互联网现代化而导致的不相关项目较少。
有许多针对 SCAD 幸存者的在线网站，但内容往往有限且/或不准确，质量较差，不针对特定人群，且难以阅读。需要合并和进一步开发健康网站的评估工具。
