Invisible: People with Disability and (In)equity in Precision Medicine Research.
作者信息
Sabatello Maya, McDonald Katherine E
机构信息
Columbia University.
Syracuse University.
出版信息
Am J Bioeth. 2024 Mar;24(3):103-106. doi: 10.1080/15265161.2024.2305565. Epub 2024 Feb 23.
Abstract
摘要
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本文引用的文献
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Precision medicine and the problem of structural injustice.精准医学与结构性不公正问题。
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Eligibility criteria in NIH-funded clinical trials: Can adults with intellectual disability get in?美国国立卫生研究院资助的临床试验的入选标准：智力残疾的成年人能参加吗？
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Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement.促进智障成年人作为直接受访者参与研究：培养信任、尊重、可及性和参与度的策略。
J Appl Res Intellect Disabil. 2022 Jan;35(1):170-178. doi: 10.1111/jar.12936. Epub 2021 Sep 24.
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Considerations in genetic counseling of transgender patients: Cultural competencies and altered disease risk profiles.跨性别患者遗传咨询中的注意事项：文化能力和改变的疾病风险特征。
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Avoiding genetic genocide: understanding good intentions and eugenics in the complex dialogue between the medical and disability communities.避免基因灭绝：在医学和残疾社区的复杂对话中理解良好意图和优生学。
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