Inwards-Breland David J, Yeh Debra, Marinkovic Maja, Richardson T R, Marino-Kibbee Bixby, Bayley Ava, Rhee Kyung E
UC San Diego School of Medicine, Department of Pediatrics, La Jolla, CA, USA.
Rady Children's Hospital, San Diego, CA, USA.
J Telemed Telecare. 2024 Feb 23:1357633X241231015. doi: 10.1177/1357633X241231015.
Access to gender-affirming care (GAC) is limited for gender-diverse (GD) youth, with the potential for further limitations given the current political climate. GAC has been shown to improve the mental health of GD youth and telemedicine (TM) could increase access to GAC. With limited data on the acceptability and feasibility of TM for GAC among GD youth, we sought to further explore their perspectives on the use of TM in their care.
We used a semi-structured interview guide, with prompts developed to explore participants' knowledge of TM, identify factors that influenced use, and advantages or disadvantages of use.
Thirty GD participants aged 13-21 years old participated in TM. While TM was not the preferred option for medical visits, it was recognized as a practical option for providing GAC. Various actual and perceived disadvantages noted by youth included, technical issues interrupting the visit, not receiving care equivalent to that of an in-person visit, having to see themselves on the screen, family members interrupting visits, and meeting new staff while connecting to a TM visit. The advantages, however, were an increased autonomy and convenience of TM, especially when used for specific aspects of GAC.
The use of TM in GAC could be optimized by limiting camera use, eliminating/reducing staff involvement, being sensitive to privacy issues, and alternating TM with in-person visits. Clinicians should be cognizant of patient preferences and concerns and be flexible with visit types.
性别多元化(GD)青少年获得性别肯定性治疗(GAC)的机会有限,鉴于当前的政治气候,这种机会可能会受到进一步限制。研究表明,GAC可改善GD青少年的心理健康,而远程医疗(TM)可以增加获得GAC的机会。由于关于GD青少年对GAC使用TM的可接受性和可行性的数据有限,我们试图进一步探讨他们对在其治疗中使用TM的看法。
我们使用了一份半结构化访谈指南,其中设置了一些问题,以探究参与者对TM的了解、确定影响使用的因素以及使用的优缺点。
30名年龄在13至21岁之间的GD参与者参与了TM治疗。虽然TM不是就诊的首选方式,但它被认为是提供GAC的一种切实可行的选择。青少年指出的各种实际和感知到的缺点包括:技术问题中断就诊、未获得与面对面就诊同等的护理、必须在屏幕上看到自己、家庭成员中断就诊以及在连接TM就诊时遇到新员工。然而,TM的优点是增加了自主性和便利性,特别是在用于GAC的特定方面时。
通过限制摄像头的使用、消除/减少工作人员的参与、关注隐私问题以及将TM与面对面就诊交替使用,可以优化TM在GAC中的使用。临床医生应了解患者的偏好和担忧,并对就诊类型保持灵活性。